Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Useful books relating to ME- for patients, and others

Discussion in 'Information and Resources' started by hellytheelephant, Feb 2, 2017.

  1. hellytheelephant

    hellytheelephant Senior Member

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    S W England
    Hi:)

    I thought it would be good to have a thread of books that you have found helpful about ME and related topics- eg, POTS, chronic illness, dealing with pain etc. This would be a useful place for newbies to start, as well as a good resource for us veterans. Include:

    Title
    author,
    what it is about ( i.e ' an introduction to anyone who has just been diagnosed', or ' a guide to living with chronic illness'..etc),
    why you rate it.
    who you think would like it (i.e ' those who are in the grieving process', 'those who are caring for a person with ME etc)

    Apologies if I am repeating an idea, but I couldn't see it when I searched.

    BTW: This is a resource and NOT a thread for promoting a particular treatment, or criticising other people's book choices!




    Ok: I will start the ball rolling with a couple:

    MANAGING CHRONIC FATIGUE SYNDROME AND FIBROMYALGIA - FEEL BETTER, TAKE CHARGE, REGAIN HOPE. By Bruce Campbell ( a previous ME sufferer)
    It is a simple and practical introduction to how to pace, and can be used as an accompaniment to thee online course, or read alone. It is a good reference book for MEer, and carers, in terms of day to day advice. Some might find it too much CBTlike, but I have no time for CBT and I find it useful.

    LIVING WELL WITH PAIN &ILLNESS- THE MINDFUL WAY TO FREE YOURSELF FROM SUFFERING. By Vidyamala Burch. This is a very down to earth account of creating coping strategies with pain, with the authors own long and painful journey with illness fully explored, as well as other accounts throughout.
    I avoid the section on posture and stretching- but it is a book I come back to inspire me and anyone interested in the possibility of using meditation to help with pain and illness management. She is the creator of 'Breathworks' and I like the way she is not talking about 'cure' or changing anything- just 'Living Well With'

    Helly x.:)
     
  2. rodgergrummidge

    rodgergrummidge

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    Wonderful idea @hellytheelephant ! I was keen to buy books to try and help me with my disease. Like you, I had done a bit of a search of PR but couldnt find such a resource. Your outline which i have pasted below is great. I included 2 suggestions that might make it simpler and easier to quickly scroll through a Book Review thread:

    1) Include a star rating which will also allow people to quickly and more easily guage which books to examine more closely as they scroll the thread.

    2) Perhaps a streamlined approach using bolded formatting of Title, Author, Star Rating and Review to allow people to more easily skim through the thread.

    Thus, there would be a consistent Book Review Template making it easier to read the thread. It would look something like:

    Title:
    Author:
    Star Rating:
    0-5
    Review (Write a review that highlights the potential strengths and/or weaknesses of the book. What aspect of ME/CFS does it focus on? Who you think would like it? etc):

    Its a pity @hellytheelephant that your post didnt get picked up by others. In part, it may be because it got lost down the very bottom of the Forum landing page under a section heading, 'Miscellaneous Resources, Projects and Archives' in the 'Information and Resources' subsection that gets very little interest or traffic (726 messages in total).

    I am new to PR. Is there some way that your idea can be promoted? Is this something that could be suggested to the PR staff? I’m sure that a compendium of ME/CSF Book Reviews would be incredibly helpful for all on PR in terms of deciding which of the many many books to purchase in trying to understand, treat and cope with their illness.

    Ideas? Suggestions?

    Rodger

     
  3. Orla

    Orla Senior Member

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    Ireland

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