Note: I am not one of the organizers and I don't have any official role (if anyone official is reading this, please make corrections if necessary!). I just wanted to pass on the information since I think it is important to get started as early as possible if you want to set up a meeting. There are a few different actions planned during ME/CFS Advocacy Week, May 8-11, 2017. I don't remember all the details (and can't seem to find a summary online). But one part of the advocacy is to have some activists travel to Washington, DC to meet with legislators while others meet with Congress members in their home districts. Yesterday there was a webinar about how to set up a meeting with your local representative. The webinar was hosted by #MEAction Congressional Chair, Gail Cooper, and Solve ME/CFS Initiative Director of Advocacy and Public Relations, Emily Taylor. The session was recorded and has been posted The next webinar will be May 3 and will cover how to conduct these meetings. I did attend yesterday's meeting and I hope to set up a meeting with my own Congress rep. I did meet a staff member last year, and was able to tell my story and pass on information about ME/CFS, but I have never had an in-person meeting with my Congress rep.