The Power and Pitfalls of Omics: George Davey Smith’s storming talk at ME/CFS conference
Read about the talk that stole the show at a recent ME/CFS conference in Simon McGrath's two-part blog.
Discuss the article on the Forums.

US Political Figures Support Increased ME/CFS Research Funding

Discussion in 'General ME/CFS News' started by Gemini, Dec 5, 2017.

  1. Gemini

    Gemini Senior Member

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    Elizabeth Warren, Ed Markey, Joe Kennedy and the entire Massachusetts Congressional Delegation signed a joint statement recognizing ME/CFS and supporting increased biomedical research.

    It was made public at the Boston area showing of the film UNREST:

    Without meaningful and immediate investments in biomedical research, the 28,000 people living with ME/CFS in Massachusetts will struggle to find answers to critical questions about the disease’s cause, diagnosis, and treatment. Events like today’s, bolstered by the advocacy and outreach performed by many in this room, has helped to bring this devastating condition out of the shadows and into the spotlight. We will keep our constituents with ME/CFS in mind as we push for expanded biomedical research opportunities and funding in the U.S. House and Senate.

    A significant milestone in ME/CFS advocacy, @RivkaRivka has organized a "Thank You Card" which is posted under Advocacy Projects, repeated here for those who wish to sign (cutoff is Sunday December 10th)

    https://www.kudoboard.com/boards/HVS8LIQQ?htm_source=%23MEAction+Newsletter&utm_campaign=7070fd753f-EMAIL_CAMPAIGN_2017_11_23&utm_medium=email&utm_term=0_c4e623c366-7070fd753f-348102801&mc_cid=7070fd753f&mc_eid=07eeb30245.

    As @Mary commented on the advocacy thread people from all over the country/world are signing the card;
    easy to do.
     
    Wayne, panckage, Cam Newton and 10 others like this.
  2. Gemini

    Gemini Senior Member

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    Bump.

    Reminder cutoff to sign the "Thank You" card is in three days-- Sunday Dec 10th.
     
  3. andyguitar

    andyguitar Senior Member

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    South east England
    Hmm.. I wonder why they have become interested in ME/CFS/
     
  4. Comet

    Comet I'm Not Imaginary

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    andyguitar likes this.
  5. *GG*

    *GG* Senior Member

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    Concord, NH
    Due to volunteers making a difference, at MA CFIDS and FM Association?

    https://www.masscfids.org/

    GG
     

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