1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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Urgent, patients need to contribute to research

Discussion in 'General ME/CFS News' started by kheopz, Jan 13, 2013.

  1. kheopz

    kheopz

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    www.meandyoufoundation.no

    In the end of 2012 the norwegian government denied further economic support of research into biomedical cause of cfs via Fluge and Mella at Haukeland hospital in norway.

    To my knowledge, their study published in 2011 had results of which there havent been anything similar in cfs research ever in terms of efficacy of a medicine.

    Fluge and Mella are two oncologists never interested or background from cfs but got interested after one of their cancer patients reported dramatic improvement in cfs symptoms. while receiving Rituximab for cancer.

    Their largest study was done with about 30 patients and 2/3 responded positively.
    Results have been promising, but patients need to take the medicine for maintenenance treatment, anyways the results are so interesting they point to a central mechanism in the B cells and auto immunity as a central part.

    These two doctors, heavily warned about getting involved with cfs want to start bigger multicenter study and are in dire need of money now !!!

    It is of vital importance that patients, caregivers and all interested in cfs can contribute with whatever amount to help push things forward. We must create change ourselves!

    All money given to meandyoufoundation will go directly to Fluge and Mella at Haukeland to fund a new study, currently around 1. 250 000 us dollars are needed.

    The people behind meandyoufoundation can be found here: http://www.meandyoufoundation.no/the-foundation.html

    You can donate on the front page by paypal.

    Help create real change!

    Thanks!
     
    ggingues likes this.

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