1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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URGENT Patient "A C T I ON" needed email by Dec. 6th to: AAC@fda.hhs.gov

Discussion in 'Action Alerts and Advocacy' started by lartista, Dec 4, 2012.

  1. lartista

    lartista Senior Member

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    Email your testimony to: AAC@fda.hhs.gov
    CC a copy to: 511bobmiller42@gmail.com and dean@hemispherx.net

    Subject Line: Treatment for Chronic Fatigue Syndrome - Ampligen
    Ampligen executives have written me personally for me to reach out to the ME/CFS community. They are asking for our written testimonies be emailed before DEC 6th to the FDA Advisory Committee! I have written my testimony but also uploaded a video, hoping that a picture is worth a thousand words. My Youtube video testimony is linked above for your viewing. PLEASE SPREAD THE WORD!!!! We have only the 4th and the 5th of December with the 6th being the latest.

    Here is there sample letter:
    Send To: Email address: AAC@fda.hhs.gov
    Subject line: Treatment for Chronic Fatigue Syndrome - Ampligen

    To The Advisory Committee Reviewing Ampligen:
    My name is _____________, I have had CFS for more than ___ years. Before I became ill I had a life that was__ your story here__. My life since having CFS has been __your story here_. After 3 decades, We Need treatment.. CFS/ME effects every moment of my life. We’ve seen and heard of patients responding to Ampligen. Give patients Hope by approving Ampligen. We want our lives back.
    Thank you,
    Full Name
    Address Here
    (Please Cc: emails to Robert Miller at: 511bobmiller42@gmail.com )
    Best Regards,
    Dean Maude
    Hemispherx Biopharma
    One Penn Center
    1617 JFK Blvd.
    Suite 660
    Philadelphia, PA. 19103
    Phone: 215-988-0080
    Fax: 215-988-1739
    Email: dean@hemispherx.net
    AMEX ticker: HEB
     
  2. Sasha

    Sasha Fine, thank you

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    UK
    Hi lartista - that's great!

    We've already got a thread going on this - the link is in my signature.
     

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