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** URGENT** Dr Byron Hyde

Discussion in 'ME/CFS Doctors' started by filfla4, Sep 22, 2010.

  1. filfla4

    filfla4 Senior Member

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    I am writing on behalf of ME Sufferers Malta. On this little island, the medical profession is still largely sceptical about this condition and there are no specialist doctors available.

    We have learnt that Dr Byron Hyde is now in Sicily, just 60 miles away, following his series of lectures in Australia and Hong Kong. As a group we are desperately trying to bring him over to Malta to give a talk to local doctors. We have corresponded with him and he is willing to do it, but we have to find the sponsorship. I am in touch with the Medical Association of Malta and need to draft a formal request for their support this afternoon.

    Can anyone refer me to OBJECTIVE information about Dr Hyde, that is not from Nightingale. Can you also provide me with any further information about his ideas on ME and any possible treatment protocols he recommends? I know that he believes in spect scans and body mapping....

    I would appreciate any further information on him ASAP!!!!!!

    Thanks for your help!
  2. jace

    jace Off the fence

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    England
    He may not be ideal for your purposes, if you wish to expand and educate on the retroviral research: this thread has a discussion on his views.
  3. filfla4

    filfla4 Senior Member

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    Thanks Jace. At this point I'm interested in anything we can get our hands on about Dr Hyde. It is not so much that we want to "expand and educate on the retroviral research". I realise that Dr Hyde made a statement in the week of the Washington Conference, refuting the retroviral links to ME. Here in Malta, we are still trying to establish the condition as a bona fide disease, rather than a psychological problem. I just question whether Hyde is the right man for the job.

    I'd appreciate any further information anyone can give me at this point!!

    Thanks!
  4. filfla4

    filfla4 Senior Member

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    Thanks Jace. At this point I'm interested in anything we can get our hands on about Dr Hyde. It is not so much that we want to "expand and educate on the retroviral research". I realise that Dr Hyde made a statement in the week of the Washington Conference, refuting the retroviral links to ME. Here in Malta, we are still trying to establish the condition as a bona fide disease, rather than a psychological problem. I just question whether Hyde is the right man for the job.

    I'd appreciate any further information anyone can give me at this point!!

    Thanks!
  5. busybee

    busybee Senior Member

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  6. jace

    jace Off the fence

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    England
  7. filfla4

    filfla4 Senior Member

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    Thanks! As a group, we've been working flat out this summer to get some coverage. It's been a first for us that the mainstream media has actually covered the subject. I am just concerned that we managed to get this coverage due to the retroviral link. At the same time, we know that Hyde made his controversial statement and perhaps by bringing him over we will be giving out mixed messages, which is a disaster for PR.
  8. sphynx on roundabouts

    sphynx on roundabouts

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    Dr Hyde's presentations at the Invest in ME conference in London in 2007(available on DVD) would be an excellent information tool for anyone interested in dispelling the myths about this illness. Soild science, evidence and experience.
    Good luck with it all in Malta - we're in this together!
  9. busybee

    busybee Senior Member

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    OK the books turned up.

    diagnostic tests of ME
    consider the following tests:
    1.SPECT
    2.Xenon SPECT
    3.PET
    4.Neuropsychological Testing

    Theres heaps of other tests mentioned to rule out thyroid cardio etc but the above are specific to a ME diagnosis.

    And I've just cried buckets full at his description of me and my mythologies :(
  10. Andrew

    Andrew Senior Member

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  11. filfla4

    filfla4 Senior Member

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    Thanks Andrew!
  12. Sing

    Sing Senior Member

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    New England
    Try www.mefmaction.net

    You might contact Lydia Neilson of www.mefmaction.net which is, I believe, the leading advocacy and educational organization for ME-CFS in Canada. She worked for Dr. Hyde years ago, helping to pull together the textbook he edited and contributed to, along with many other specialists in this field.
  13. Andrew

    Andrew Senior Member

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    Los Angeles, USA
  14. filfla4

    filfla4 Senior Member

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    Thanks Andrew. I think Dr Bell would be perfect but unfortunately, last I heard his lecture tour was cancelled for personal reasons. As a group we have decided not to bring Dr Byron Hyde over. It's a bit pity and involved much deliberation. However the audience here is extremely conservative and his profile didn't fit the bill.

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