Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Discussion in 'Action Alerts and Advocacy' started by parvofighter, Apr 5, 2014.

  1. parvofighter

    parvofighter Senior Member

    ... With my apologies if this is a duplicate thread.

    Hello to all Canadian Myalgic Encephalomyelitis and Fibromyalgia patients, friends, and family! As you may know, the ME/FM Action Network brought us the Canadian Consensus Criteria; this national advocacy body, works hard to fight for more biomedical research, diagnostics and treatment for our diseases. For example, they organized the meeting with the Canadian Institutes of Health Research, at the San Francisco IACFS/ME conference, and got CIHR to commit to a workshop to discuss research priorities for ME/CFS.

    All you need to do is:
    • Click on this link:
    • Provide your email address and a password (Only Canadians can vote; and you can opt OUT of marketing emails)
    • Then log on every day (until April 8th), click on ME/FM Action Network, and “Repeat my Vote”.
    • If you have voted on consecutive days, you also get a BONUS vote. Simply click on, “Complete my Vote”, and ME/FM Action Network to get your bonus vote. You will get a Bonus Vote EVERY DAY if you vote every day!
    That’s only 4 days of voting left! Please share widely – we are sooooo close to winning $10K, and that could go a long way for our advocacy Network!

    Thank you!

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