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Upper body and head feel hot and overheated and feel weak and shaky from even low level of exertion

Discussion in 'General Symptoms' started by knackers323, Nov 19, 2013.

  1. knackers323

    knackers323 Senior Member

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    Does anyone else experience these?

    The weak and shakiness is how I think you feel with low blood sugar but that tests ok.

    Is there a condition where the glucose is in the blood but can't get into the cells or they are damaged and can't use it properly?
     
  2. taniaaust1

    taniaaust1

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    It sounds to me like OI symptoms, make sure you dont have dysautonomia causing it, various types can cause weakness/shakiness.

    Hot head or hot flushes can also be caused by it (I find my orthostatic hypertension can make my head feel hot or me hot in places).
     
  3. knackers323

    knackers323 Senior Member

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    Is a hot flush something that comes and goes quickly?

    My heat comes on and gets worse the more exhausted I am and stays around. It kind of feels like Inflamation or something.

    Do you know if Inflamation or infection in the body could cause this?

    Or if either of these things can actually make the skin warm to touch?

    Thanks
     
  4. Sparrow

    Sparrow Senior Member

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    Sounds very much like what happens to me when I've been overexerting myself really badly. One of my specialists believes it to be related to inflammation of my spine and/or brain (the encephalomyelitis part of Myalgic Encephalomyelitis) . Often the skin on my face especially gets feeling really hot, in a very distinctive way, and my whole body gets super weak and shaky, like you described. My skin does tend to actually get overly warm to the touch sometimes when it's happening, but I don't register as having a fever so I think it's probably just extra blood close to the surface of the skin (which makes sense, since I often get visibly flushed). I also often get sweaty when this is happening or about to happen, and sometimes I'll have a concentrated burning along my upper spine and into my head as well if it's bad enough (usually if I try to push on with what I'm doing rather than stopping as soon as I notice the heat).

    For me, I've now learned it's a sign that I've done WAY too much (usually mental activities, like watching TV or using the computer or talking with someone - I've gotten a lot better about not overdoing it physically, but mental still gives me trouble sometimes). I find a little bit of relief from drinking lots of cold water and putting an ice pack along my spine and the base of my head. And I definitely need to stop the mental activities entirely for a while to let it calm down some. But once I've gone far enough to trigger the problem it tends to linger around at at least a low level no matter what. Trying to avoid triggering it in the first place has been far more effective, and if I can manage to avoid going too far that way, then the amount I can do without problems seems to gradually improve over time.
     
    rosie26 likes this.
  5. rosie26

    rosie26 Senior Member

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    These symptoms are on my most regular appearing list of symptoms that I get with ME deterioration from having overdone (and it sometimes doesn't take much to overdo).

    I don't know what is causing it. The weakness and shakiness forces me to my bed and I rest until it improves. I use a cold compress to my forehead to get as much heat out of my head as possible. They are usually accompanied with other symptoms, headache and nausea, sinuses also flare, heart..... as happens with ME, lots of symptoms !
     
  6. knackers323

    knackers323 Senior Member

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    I've been doing some searching and two prof. Nicolson and Roberts say that intracelular bacteria get in the cells and damage them so they can't take up glucose or use it properly to produce energy.

    This is what creates lack of energy and weak and shaky, hypoglycaemic symptoms.

    The treatment is attack the infection and something called NT factor cell lipids and/or amino acids to help rebuild the damaged cells. Anyone tried these things?
     
  7. barbican1

    barbican1

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    you may not have damaged cells at all. Have you discussed this with your doc?
     
  8. knackers323

    knackers323 Senior Member

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    No these two theory's are from professors that are overseas or do research but don't practice.
     
  9. barbican1

    barbican1

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    Shakiness/hot flushes may just be anxiety symptoms
     
  10. Valentijn

    Valentijn Activity Level: 3

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    Pretty much anything can be anxiety symptoms. But since such symptoms come in response to physical exertion, and usually in the absence of anything that "feels" like anxiety, I would say it is highly unlikely that common ME symptoms are due to anxiety.
     
  11. barbican1

    barbican1

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    read my post again. I didn't say CFS/ME is caused by anxiety. I was responding to the symptoms in question. Now you want to discuss the causes of CFS/ME? Please open another thread. Thank you.
     
  12. Valentijn

    Valentijn Activity Level: 3

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    They were asking in the context of ME/CFS, being as this is an ME/CFS forum. Anxiety is not common in ME/CFS, but Orthostatic Intolerance certainly is. Hence it seems very odd to assume there's a psychological cause of symptoms, when the physical cause is much more likely.
     
    rosie26 likes this.
  13. Sparrow

    Sparrow Senior Member

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    True. But it's definitely an ME symptom as well. I have them related to my ME and unrelated to any anxiety issues. Being nervous about something doesn't cause that stuff for me, but calmly watching too much television or reading does. My mood and physical functioning aren't connected.

    It's also a very particular kind of "heat" for me, unlike anything else I've experienced in my healthy life. And the consequences if I keep trying to push through with whatever activity I'm doing don't fit with any description of anxiety or panic attacks.

    Don't mean to jump on you. It's a fair initial suggestion, but the specifics being described by the poster sound very much like what happens to me, and I know that mine is not anxiety-based. I've heard similar things from others with this illness, and my specialist has seen it as well, so I think it's probably safe to assume that it goes along with the illness sometimes. I also find that most people I know who have anxiety issues severe enough to cause strong physical problems are aware they're feeling some kind of anxiety, or tend to have some type of emotional trigger for it. No nervousness was mentioned here.
     
    taniaaust1, rosie26 and Valentijn like this.
  14. taniaaust1

    taniaaust1

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    yes for me when its caused by a sudden orthostatic hypertension flare, it can be.

    That doesnt sound so much like OI stuff but more of the other ME kind of stuff.
     

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