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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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Upper airway resistance syndrome

Discussion in 'General ME/CFS Discussion' started by Martial, Apr 23, 2014.

  1. Martial

    Martial Senior Member

    Ventura, CA
    Just found out I had this and WOW! Is it so vital to treat, while dealing with chronic illness I was having sleep issues much akin to sleep apnea without ever treating it! This lead to a dysregulated immune system which further stressed my infection and all the other negative effects of severe sleep deprivation!

    In my case it happens because my jaw is set back, over bite, with a tongue that is pretty big, and enlarged tonsils so my breathing airway gets obstructed, alongside a deviated septum which prevents good breathing through my nose.. I was using a mouth guard for snoring over a year ago and it helped a lot but I started developing TMJ from it so had to stop.

    Anyways wanted to post a thread about it with a link to read about it for others to possibly look into, I know I will never get fully better if this is not treated properly myself!

    The info about it all can be found in the link I provided below!


    Last edited: Apr 23, 2014
    adreno likes this.
  2. ukxmrv

    ukxmrv Senior Member

    How did he test for it Martial?

    I've known a few PWCFS who have been told that they have this but never given any meaningful tests and felt no better after exercises/treatment etc.
  3. SickOfSickness

    SickOfSickness Senior Member

    I hope you get a lot of benefits from treating the UARS.
  4. Thinktank

    Thinktank Senior Member

    Europe + South East Asia
    Interesting, how can UARS be treated?
  5. Martial

    Martial Senior Member

    Ventura, CA

    Clinical diagnosis at sleep study clinic though he did not give me the exact name back then, Just knew it was a form of sleepind disorder where the airway gets obstructed by structural issues. Basically the tongue goes back and blocks breathing but very hard to catch on a traditional apnea test, you have to look for other specific things to add into the test for it. So the clinic would need knowledge on the cndition and be equipped to do proper testing for it.


    It is treated similiar to apnea with Cpap, or correctional surgery, alongside other options like mouth guards to bring the lower jaw forward, breathe right strips, and sleep habit changes like sleeping on one's side.

    @SickOfSickness Thanks!

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