patient.journey
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http://valerieeliotsmith.wordpress....he-secret-files-on-mecfs-wessely-and-the-wok/
I have finally received all of the results of my appeals regarding the redacted information in these files so it is now possible to do a wrap-up of this topic.
The full story of my work on these files can be found in my post ‘The “Secret” Files on ME/CFS’ in the August 2012 archive (see sidebar on the right) but here is a brief re-cap:
For several years, there had been considerable speculation and rumour surrounding some “secret” files on ME/CFS which are held in The National Archives (TNA) at Kew in London, UK. In September 2011 I decided to use the Freedom of Information Act of 2000 (FoIA) to see if the files could be opened up. It transpired that there were two files - one from the Department of Work and Pensions (DWP) and one from the the Medical Research Council (MRC).
The files contain documentation about ME/CFS (correspondence, notes of meetings, background material and details of benefits claims/research applications). Both files had been reviewed and archived in the normal way during the 1990′s. Because each file contained information which was properly exempt from disclosure under the Act, they were closed to the public until 2072 (DWP) and 2071 (MRC),,,,,
I have finally received all of the results of my appeals regarding the redacted information in these files so it is now possible to do a wrap-up of this topic.
The full story of my work on these files can be found in my post ‘The “Secret” Files on ME/CFS’ in the August 2012 archive (see sidebar on the right) but here is a brief re-cap:
For several years, there had been considerable speculation and rumour surrounding some “secret” files on ME/CFS which are held in The National Archives (TNA) at Kew in London, UK. In September 2011 I decided to use the Freedom of Information Act of 2000 (FoIA) to see if the files could be opened up. It transpired that there were two files - one from the Department of Work and Pensions (DWP) and one from the the Medical Research Council (MRC).
The files contain documentation about ME/CFS (correspondence, notes of meetings, background material and details of benefits claims/research applications). Both files had been reviewed and archived in the normal way during the 1990′s. Because each file contained information which was properly exempt from disclosure under the Act, they were closed to the public until 2072 (DWP) and 2071 (MRC),,,,,