Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Update on CFI (Chronic Fatigue Initiative)/Lipkin patient samples from Nancy Klimas

Discussion in 'General ME/CFS News' started by oceanblue, Jan 21, 2012.

  1. oceanblue

    oceanblue Guest

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    I think there's a lot of confusion about how the patient samples being collected for the Lipkin XMRV study relate to the similar set of samples being collected by the CFI and which will be used by Lipkin and colleagues for pathogen discovery. This comment posted by Nancy Klimas on 16 Jan on the Research1st website might help clarify things:
     
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  2. Ember

    Ember Senior Member

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    Of interest here may be Ian Lipkin's comments on these cohorts. He's been quoted concerning the Lipkin/Hornig study:

    Amy Dockser Marcus quotes him concerning the XMRV study:

     
    ixchelkali, WillowJ and oceanblue like this.
  3. Desdinova

    Desdinova Senior Member

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    Everyones viewpoints? Now do we know who 100% is having their viewpoints included? Do we know for a fact that it isn't anyone besides the key researchers? Or has (someone or some individuals from) the NIH or CDC had a say in things?
     
  4. Ember

    Ember Senior Member

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    In any case, it seems clear to me from Ian Lipkin's comments that they're using the CCC (with or without Fukuda) and adding in signs of infection at onset in the case of the XMRV study. That seems to be the end result of including everyone's viewpoints, and it's the end result that ultimately matters to us.
     

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