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Update on Alex3619: in hospital but doing well

Discussion in 'General ME/CFS News' started by WillowJ, Feb 27, 2013.

  1. Bob

    Bob

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    Best of luck Alex. Hope you get what you need without too much hassle.

    But do remember that if all else fails then a brief course of online CBT (aka FITNET) will lead to a swift 'recovery' (possibly from all known maladies) at six months. (At long-term follow-up it will have made absolutely no difference whatsoever, but that's an unimportant detail.)

    (Sorry, I just couldn't resist another dig at CBT!)

    Best wishes for swift healing.
     
  2. alex3619

    alex3619 Senior Member

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    Dig? You weren't serious @Bob? Oh, wait, is it me who is not serious?

    Go ahead and make as many digs at CBT as you want!
     
    Bob likes this.
  3. barbc56

    barbc56 Senior Member

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    Were you trying to get in touch with your"inner comedian?:lol:

    Wishing you a speedy recovery.
     
    MeSci and alex3619 like this.
  4. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    Do you mean @alex3619 doesn't deserve one? After trying to read his superb post in this thread just now (but having to give up due to cognitive fatigue) I think that he might.

    Good luck, Alex. I'm sure you will be greatly missed if you lose access.
     
  5. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    :lol:
     
  6. xchocoholic

    xchocoholic Senior Member

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    Good luck Alex. Hope it goes well. X
     
  7. Overstressed

    Overstressed Senior Member

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    Good luck, Alex! I wish you a quick and good recovery! We're already waiting impatiently for your contributions on this forum.

    Best wishes,
    OS.
     
    WillowJ, beaker and alex3619 like this.
  8. madietodd

    madietodd Senior Member

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    I hope you get a pretty nurse with a wicked sense of humor.
     
  9. alex3619

    alex3619 Senior Member

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    Like the two last time? Same hospital. :woot:
     
  10. Snowdrop

    Snowdrop Senior Member

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    Good luck to you with this new surgery Alex.
    I wish you a speedy and excellent recovery.
    Looking forward to seeing you back online.
     
    beaker and MeSci like this.
  11. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    @alex3619

    Just tuned in here (I am moving house so not on the forum much).

    Hope the system works for you with many hidden bonuses (cute nurses, free anything-worth-having, etc.:D).

    Just make sure you get WiFi somehow. We might all just wither up and die of cognitive decline without your posts! :(

    But most importantly, make them get your damn leg right this time!

    Best,
    Sushi
     
    Sing, MeSci, beaker and 4 others like this.
  12. GaryK

    GaryK

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    I second what you you said so well sushi! write when you can Alex...Your post are always important to me
    Gary K
     
    MeSci, rosie26 and alex3619 like this.
  13. alex3619

    alex3619 Senior Member

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    I will be heading up to hospital in a few hours. I will let you know what the result is when I can. There might be pressure on me to accept being on a waiting list, but there are good grounds that doesn't apply here.
     
    taniaaust1, Valentijn, Sea and 4 others like this.
  14. WillowJ

    WillowJ Senior Member

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    All the best on your quest, Alex.
     
    MeSci likes this.
  15. alex3619

    alex3619 Senior Member

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    The Good, the Bad and the What The?

    Just got back from the hospital. I probably don't need serious surgery but that is not confirmed yet.

    I took Heapsreal's advice and went to emergency instead of going through normal registration. Very good move. :)

    I did have to wait quite a bit, but then was maybe an hour in the docs office first time, had some blood tests, and sat waiting for the results.

    Upshot is things are even worse now than a month ago, but he spent time while I was waiting for blood test results ringing around hospital specialists including other hospitals. I am to be closely monitored, and will soon get an appointment for a specialist in the mail. No waiting list, no stuffing around.

    The mystery remains though. My brother has haemochromatosis, a high iron disorder, so my iron is watched. I have only one known haemochromatosis gene. The last blood test was bad. This year I have gone from fine to very bad, far too sudden for this to be normal. Which is why I suspected the leg implant. So where is the iron coming from if I have a titanium implant? Do other people get the tooth fairy and I get the tooth fairy equivalent of iron man?

    Its a shame I can't give blood, as mine is very anti-anemic. My haemoglobin is quite high.

    Bad news is they probably will want to do a liver biopsy. Oh well.

    So I am back for now, but once I start treatment for the iron I will probably have another day a week I wont be here much. :(

    I have a feeling the coming year is going to be a very long one for me. At least I have all of you to look forward to chatting with. :thumbsup:
     
    taniaaust1, SOC, Sing and 4 others like this.
  16. rosie26

    rosie26 Senior Member

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    :hug: We'll try and make it an easier year for you Alex :)
     
  17. Sea

    Sea Senior Member

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    Iron can be high if there is infection. Maybe a low grade infection + one haemochromatosis gene is enough to push it up. The doctor is watching my iron carefully at the moment. Mine creeps too high but then comes down again by itself. I don't have any of the haemochromatosis genes they test for, although I know there could be other less common ones involved.

    All the best for your specialist referral Alex, I hope you get it seen to quickly
     
    alex3619 likes this.
  18. alex3619

    alex3619 Senior Member

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    Something I have been thinking about is that the liver stores a lot of iron. Pathogens, especially bacteria and viruses, love high iron. So it makes sense there could be liver infection, or something that changes the liver regulation of iron. That is part of why I think they want a liver biopsy. It can tell the two conditions apart I suspect.

    The doc also stuck in a quick hepatitis screen today: negative.
     
    SOC, Valentijn and Sea like this.
  19. leela

    leela Slow But Hopeful

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  20. August59

    August59 Daughters High School Graduation

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    Coincidence I hope, but my liver has gone crazy in the last 6 months. My enzymes have always been well within normal values, but with no change in diet I all of a sudden have a fatty liver with inflammation only in the lobe that is closer to middle of the body.

    They just did another Hepatitis panel on me, but it's my third one. Seems like it has been every 5 years they do one and it is always negative. I have no tattoo's, so I expect my last one is negative to. I hope
     
    alex3619 likes this.

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