Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
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Update from Haukeland on the genetic predisposition project

Discussion in 'Latest ME/CFS Research' started by mango, May 11, 2016.

  1. mango

    mango Senior Member

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    http://me-forskning.no/oppdatering-fra-haukeland-om-prosjektet-pa-genetisk-predisposisjon/

    Translated by Google:
     
  2. Sasha

    Sasha Fine, thank you

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    That sounds very exciting!

    What do you reckon, @Simon?

    @mango, what does "eksom" mean?
     
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  3. mango

    mango Senior Member

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    I'm totally not the right person to answer that! o_O :D As I understand it, it's something to do with big-scale sequencing of the part of our genes that codes for proteins? But I could be totally wrong.

    ETA: I believe "exome" is the English word for it? Wikipedia says:
    https://en.wikipedia.org/wiki/Exome_sequencing
     
    Last edited: May 11, 2016
  4. msf

    msf Senior Member

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    I found this part particularly interesting: ´We believe any such families may have genetic variants directly in "effector" of symptoms (which symptoms are created).´

    I believe that mild ME runs in my family (both me and my father have had it, with very similar symptoms).
     
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  5. A.B.

    A.B. Senior Member

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    Fluge and Mella continue to impress.

    I can also anecdotally confirm the familial clustering.
     
  6. JaimeS

    JaimeS Senior Member

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    Ditto! Mother and sister. :(
     
  7. Bob

    Bob

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    I like this sort of research i.e. growing cell cultures. I wonder what they will be looking for and testing for.
     
  8. NL93

    NL93 Senior Member

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    I wonder whether CBT also reverses this genetic mutation. Because the head is attached to the body. And, you know, feelings and stuff.
     
  9. JaimeS

    JaimeS Senior Member

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    My article about this should be on #MEAction this afternoon. :)
     
  10. trails

    trails Senior Member

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    Same here. Mother and both of my sisters.
     
  11. Old Bones

    Old Bones Senior Member

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    Father, and paternal grandmother, in my case (based on symptoms/degree of functional disability).
     
  12. JaimeS

    JaimeS Senior Member

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    But psychological disorders are heritable. Everyone knows this! If the genes are solely understood to be related to the immune or endocrine system, the endocrine system is also related to feelings...

    ...and stuff.

    It's amazing how you can turn ABSOLUTELY ANYTHING into the psychogenic argument. That's the real beauty of it. :rolleyes:

    -J
     
  13. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

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    ... But the seperation of mind and body is artificial.. If you got aids in your body, u probably got aids on your mind! So you must get aids out of your mind, to get aids out of your body. Antivirals simply mask the disease in your soul.
     
  14. NL93

    NL93 Senior Member

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    A compromised immune system is also one of the classic signs of depression and stress. No wonder they have so many infections. And the worrying about that leads to further stress and depression. It's a self fullfilling prophecy.
     
  15. BurnA

    BurnA Senior Member

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    :rofl:
     
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  16. Sasha

    Sasha Fine, thank you

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  17. eastcoast12

    eastcoast12 Senior Member

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    LOL. So your sayin all we need to do is hit the confession booth, say a few Hail Marys and our diseased soul will rest cleansed.
    You know what I never understood and have never heard an answer for is if we are all just crazy, how the hell do we all have the same wired and obscure symptoms. I certainly didn't know about any of this until I started feeling this. It took a year and about 10 doctor visits before I decided to research online. The only explanation I can think of is we're not crazy and it's real or that were so insane we can communicate with each other telepathically.
     
  18. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

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    I like the latter. Telepathic lunacy syndrome. Might even be taken seriously as the abbreviation is close to ALS.
     
  19. perrier

    perrier Senior Member

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    In our case, no one on any side of the family, including grandparents, has this illness. No one. In fact, strength, longevity, no illness, not even cavities, has been the norm until my daughter presented with a very severe form of this monstrous illness.
     
  20. Mesurfer

    Mesurfer

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    Same here. My great grandmother sister and I all struck with M.E.
     
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