1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
9th Invest in ME International ME Conference, 2014 - Part 1: Autoimmunity and ME
Mark Berry begins a series of articles on the 9th Invest in ME International ME Conference in London, with a look at three presentations on autoimmunity
Discuss the article on the Forums.

UPDATE: BLOOD WORKING GROUP

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Mindy Kitei, Aug 4, 2011.

  1. Mindy Kitei

    Mindy Kitei

    Messages:
    70
    Likes:
    55
    The Blood Working Group's Phase III results are expected in a month. Interview with Dr. Michael P. Busch, whose institute is breaking the codes.

    Mindy Kitei
    CFS Central
    http://www.cfscentral.com
  2. eric_s

    eric_s Senior Member

    Messages:
    1,925
    Likes:
    73
    Switzerland/Spain (Valencia)
    Wow, this will be a big thing, either way. Thanks. Haven't even read the article yet.
  3. Esther12

    Esther12 Senior Member

    Messages:
    5,270
    Likes:
    5,483
    Thanks Mindy. Sounds pretty thorough, I guess to make up for the ambiguity of the last phase.

    It sounds so similar to the Lipkin study, that it seems a bit strange that they did not coordinate them more.
  4. eric_s

    eric_s Senior Member

    Messages:
    1,925
    Likes:
    73
    Switzerland/Spain (Valencia)
    In addition to these 2 there's also the Maldarelli study, which will also do more or less the same thing, the WPI and other labs will test blinded samples (i think they are blinded) with their own assays.
  5. eric_s

    eric_s Senior Member

    Messages:
    1,925
    Likes:
    73
    Switzerland/Spain (Valencia)
    As soon as anybody hears or reads any hint about these results, please post it here. Thanks.
  6. redo

    redo Senior Member

    Messages:
    830
    Likes:
    89
    It's been a month know. Anyone who knows how the progress is going?
  7. Jemal

    Jemal Senior Member

    Messages:
    1,031
    Likes:
    60
    Some people from the other forum contacted some of the members of the BWG. A response a couple of days ago indicated that they are waiting for the results to be published, before they will talk about it.
  8. Wonko

    Wonko Senior Member

    Messages:
    627
    Likes:
    104
    England
    hmm...so if they are positive then we'll never hear then (as there seems to be "issues" with publishing papers that dont think xmrv is contamination)
  9. Esther12

    Esther12 Senior Member

    Messages:
    5,270
    Likes:
    5,483
    These results will have to come out. I think that, if they were positive, then there would have been more urgent action taken. That they're going through peer review etc makes me think that it's negative (but I'm not expecting XMRV to work out, so that could just be my prejudices).
  10. Jemal

    Jemal Senior Member

    Messages:
    1,031
    Likes:
    60
    I think the idea always was to publish the results from this phase, positive or negative. Positive results might be more difficult to publish I guess, though the BWG is not just another institute doing research of course.

    I have no idea what the results are going to be. My gut feeling is negative, but everything is possible: one of the members of the BWG was very recently funded for another XMRV study.

    For now it means more waiting for us patients...
    beaker likes this.
  11. alex3619

    alex3619 Senior Member

    Messages:
    7,236
    Likes:
    11,382
    Logan, Queensland, Australia
    I think these results will be published. They do not have to be published in a leading journal, but will probably be released as an official report.
  12. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

    Messages:
    2,490
    Likes:
    1,175
    NYC (& RI)
    I agree with this.
  13. Andrew

    Andrew Senior Member

    Messages:
    1,962
    Likes:
    1,229
    Los Angeles, USA
    I thought positive studies tend to be reviewed more thoroughly, while negative ones are quick.
  14. Ernie

    Ernie *****

    Messages:
    118
    Likes:
    33
    They had just started compiling the results according to Mindy's blog. And there were several labs. This wasn't going to be done overnight.
  15. alex3619

    alex3619 Senior Member

    Messages:
    7,236
    Likes:
    11,382
    Logan, Queensland, Australia
    I am not willing to speculate about the BWG results a week before they are making a presentation at the Ottawa conference. After that we will have more information. Bye, Alex
    taniaaust1 and WillowJ like this.
  16. redo

    redo Senior Member

    Messages:
    830
    Likes:
    89
    Where did you get the info about the BWG and Ottawa?
  17. alex3619

    alex3619 Senior Member

    Messages:
    7,236
    Likes:
    11,382
    Logan, Queensland, Australia
    http://www.iacfsme.org/Conferences/2011AgendaProfessional/tabid/461/Default.aspx

    9:15 am 10:30 am
    Session: Virology Research
    Session Chair: Jose Montoya, M.D.

    Blood XMRV Scientific Research Working Group: Latest Findings
    Graham Simmons, Ph.D.

    This information has been public for months, and is one big reason I have been primarily waiting.
    justy likes this.
  18. ukxmrv

    ukxmrv Senior Member

    Messages:
    3,456
    Likes:
    1,968
    London
    Thanks Alex,

    I'd lost track of that!

    They don't have long to go over 4 topics in an hour and a quarter? Better than nothing of course

    9:15 am 10:30 am
    Session: Virology Research
    Session Chair: Jose Montoya, M.D.

    Blood XMRV Scientific Research Working Group: Latest Findings
    Graham Simmons, Ph.D.


    Detection Of Anti-XMRV Antibodies In Serum of CFS Patients and Healthy Blood Donors in Belgium
    Kenny De Meirleir, M.D.

    Detection of MLV-like Gag Sequences in Blood and Cell Lines Incubated With Plasma From CFS Patients and Controls
    Maureen Hanson, Ph.D.

    Chronic Fatigue, Nonrestorative sleep, Musculoskeletal Pain, and Depression in a Disabled Cohort of Survivors of Acute SARS Viral Disease
    Harvey Moldofsky, M.D., Dip.Psych., FRCPC, FAPA
  19. Daffodil

    Daffodil Senior Member

    Messages:
    2,834
    Likes:
    814
    just so sick of seeing studies wasting time on blood flow patterns, exercise, and all these things secondary to the infection...i just want them to look for the #$@#@W infection!
  20. free at last

    free at last Senior Member

    Messages:
    565
    Likes:
    97
    Exactly Dafdodil, is it really that hard to just cut to the chase. Interesting that K De Meirleir is presenting, looks like he might be finding it, what am i missing here

See more popular forum discussions.

Share This Page