Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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"Unrest" updates

Discussion in 'General ME/CFS News' started by Sasha, Mar 11, 2017.

  1. Kalliope

    Kalliope Senior Member

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    Google-translation of today's article on ME in the Danish newspaper Politiken.

    It is a large article about the documentary, Jen Brea, and the Danish debate on ME as a conversion disorder. The journalist saw the documentary together with an ME-patient and tells about her thoughts and reactions to the movie.
     
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  2. Joh

    Joh Inactivist

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    Thanks, @Kalliope! I like that the Google translation turned "yuppie-flu" into "hippie-flu". :)

    Don't know if there's a word for it, but it annoys me, that articles in general have something like a "happy ending syndrome". Every article has to end on a happy note and ME doesn't work that way. This ending probably isn't the best example, as it's rather harmless, but the last sentence says that the ME patient will after her PEM all week
    That would be a nice surprise. ;)
     
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  3. Kalliope

    Kalliope Senior Member

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    Odd... it says hippie-flu also in Danish o_O Hadn't noticed that. Guess the journalist misheard?
     
    Last edited: Mar 17, 2017
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  4. justy

    justy Senior Member

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    I signed up some time ago to host a screening of the film, but have never heard anything from them about this. If possible my plan would be to get the local university, which has a bog Arts centre to screen it. But as I said I cant go to any effort which might make me more ill until I hear something from them (when you sign up it says we will contact you to let you know how to do this). I have just presumed they are not at that stage yet.

    Would love to bag myself the Welsh premier.
     
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  5. slysaint

    slysaint Senior Member

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    potential idea for next #millions missing?
    [​IMG]
     
  6. Joh

    Joh Inactivist

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    I'd definitely rather have the hippie- than the yuppie-flu. :tulip: :)

    @justy, your plan sounds great! The FAQ state, that they show Unrest at film festivals worldwide in spring and summer and that the community screenings will start after that (and after the theatrical release?) in fall. http://www.unrest.film/faq/
     
  7. Rick Sanchez

    Rick Sanchez

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    http://politiken.dk/forbrugogliv/su...-og-venner-siger-de-bare-skal-tage-sig-sammen

    The article in Politiken is pretty amazing. The journalist displays both a thorough understanding of the recent developments in CFS research and also manages with great empathy to show the plight of a Danish CFS sufferer as well as Brea.

    CFS has had some of its best coverage the last weeks in Denmark. I am so saddened not to be able to be in Denmark as 'Unrest' is premiering here, because the movie might very well make a serious difference for CFS sufferers in the country.
     
  8. Old Bones

    Old Bones Senior Member

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    Here's an update from Jen:

    "Last night, Unrest made its international and European premiere in Copenhagen, Denmark at CPH:OX, one of the leading festivals for documentary film in the world.

    It was especially moving to meet Ketty Hansen, mother of Karina Hansen, a young Danish ME patient who three years ago was removed from her home by police in order to undergo forced psychiatric treatment for her ME."

    "The feeling in the room last night is hard to put into words - it was so loving, so vulnerable. It reminded me that while no one would ever chose to be a resident of this strange, transnational Republic of ME, what we share as part of this community transcends language, culture or country. There is power in that."

    Go here for the full write-up, and to view 12 photos:

    https://www.facebook.com/unrestfilm/

    While there, take a look at the Comments, including this one:

    "Vibeke Vind One year ago, I wrote to Danish journalists that I was looking forward to see a film like Dallas Buyers Club about ME. I wrote that such a film would show the insane idea that exercise could cure an illness, where energy-production is impaired. The film would show that people were joining together in societies on the internet to share experiences about treatment, medicine, coping etc. How ME-patients were stigmatized, isolated and their basal human rights violated. I wrote that people after viewing the film would be in shock and say: ‘how could this happen, why did nobody do anything’. My guess was that this film would be far out in the future. I had not imagined that only one year after I were sitting in a Danish cinema, looking at this ME Dallas Byers Club documentary. It was so amazing that I am out of words. Thank you so much Jennifer, Omar and the crew. You did it."
     
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  9. Old Bones

    Old Bones Senior Member

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    Exciting news for those in western Canada -- DOXA (Vancouver's Documentary Film Festival) will be screening "Unrest" on:

    Friday, May 12 at 8:30 p.m.
    Saturday, May 13 at 12 p.m.

    http://www.doxafestival.ca/program/films-az

    @JenB Might you be attending either of these screenings, to help those forum members who are considering attending choose their day?
     
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  10. char47

    char47

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    I bet Per Fink et al are pretty unhappy :)

    mind you, i'd prepare yourselves for the inevitable backlash of cbt fan club stepping up their own media presence :rolleyes:
     
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  11. JaimeS

    JaimeS Senior Member

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    I got a 'thank you for agreeing to help host a showing' email the other day. Things are moving forward -- exciting!
     
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  12. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    Just a reminder to check here http://www.unrest.film/screenings/ often to see if Unrest will be playing near you. Currently scheduled locations are Nashville, TN, Baton Rouge , LA, Maitland, FL, Ontario, Canada, Bentonville, AR, Vancouver, BC, and Mendocino, CA.
     
    MEMum likes this.
  13. Old Bones

    Old Bones Senior Member

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    The "Unrest" crew is asking people to contact their local film festivals to ask that they consider screening the documentary. Here's a link to the request, including a sample email:

    http://www.unrest.film/contact-your-local-film-festival

    I have just done so, customizing the email for my city's location, and to make the message more personal.
     
  14. Old Bones

    Old Bones Senior Member

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  15. lizteva

    lizteva

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    Hi Old Bones. Jen won't be attending in person, but we're hoping to finalize her attendance via Skype for the Q&A that follows the screening on Saturday May 13th. Just waiting for final confirmation on this.
    The ME|FM Society of BC is sponsoring this event. We will be speaking/presenting at both screenings, to raise awareness of local/provincial M.E. patients, and will have an info table set up for the Saturday screening. So everyone come say hi!
     
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  16. Old Bones

    Old Bones Senior Member

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    Here's good news for those ME patients who won't have an opportunity to see Unrest in a theatre -- either because it doesn't screen in their community, or they are unable to attend.

    Sundance Announces New Creative Distribution Fellowship with Columbus, Unrest

    "Added Unrest‘s Jennifer Brea, 'We can’t wait to connect our film directly with its audience, combining a bespoke theatrical release with innovative ways of reaching those who would not be able to see the film in theaters. With the aid of the Creative Distribution Fellowship we’ll be able to actively engage with our viewers, encouraging an experience that will last far beyond the end of the film.'”

    http://filmmakermagazine.com/102378...fellowship-with-columbus-unrest/#.WQjp_1Xytdg
     
  17. slysaint

    slysaint Senior Member

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  18. charles shepherd

    charles shepherd Senior Member

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    The MEA is working with Jen Brea and the UK production team on a number of initiatives aimed at the public, health professionals and politicians

    With regard to parliamentary awareness, we are looking at options for holding a screening and discussion of the film at Westminster for MPs and members of the House of Lords

    CS
     
  19. NelliePledge

    NelliePledge plodder

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    nice one Dr S:thumbsup:
     
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  20. slysaint

    slysaint Senior Member

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    Maybe you could also get Nathalie Boulton (Made film Voices from the shadows) to do a talk also?
    http://voicesfromtheshadowsfilm.co.uk/news-2/
    N.Boulton:
    "I have a long experience of family members having ME. My mother had ME until her death, following a severe relapse 11 years ago; I am a carer for my daughter who has been severely ill for 26 years, since she was a child; and my youngest son was diagnosed with ME last year."

    "Among her friends who would appear to have been accurately diagnosed with ME/CFS, anaemia, Vitamin D deficiency, and osteoporosis are common, but what is shocking is that often this was only discovered when the patients themselves insisted on tests! An interesting recent development has been the discovery that many of Anna’s ME friends also suffer from POTs, hyperflexibility / EDS, and food and environmental sensitivities, or Mast Cell Activation Disorder. This constellation of conditions is poorly recognised in the UK.."

    "‘'the politics of research funding’:.........."universities’ requirement that researchers win large research grants in order to keep their jobs. This involves presenting the research to auditors as socially useful within a five year framework.
    "Another complication is that senior researchers are often called upon to validate party political agendas rather than remaining objective."

    "This recent BBC news quote by the paediatrician Dr Esther Crawley fills me with alarm. 'Children attending my specialist service only attend two days a week of school on average. This means that only the most severe cases are getting help.' Even NICE describes severe CFS/ME patients as housebound and may need help with all aspects of self-care. So why claim these relatively active children are ‘the most severe cases’, and that ‘the most severe cases’ are getting help?"

    "So when I consider the future for Anna and her friends and for the younger generation of children with ME, I am horrified. I am horrified at the inexorable expansion of the destructive influence of a self-perpetuating CFS/ME research and delivery mechanism, involving a Russell Group University, a very large paediatric CFS centre with outposts around the country and a children’s charity – with support from the Science Media Centre, and even the CFS/ME Research Collaborative!"

    see also on FB https://www.facebook.com/Voicesfrom...AETfCz_TWtSFFskqQ3jHMqkqaRIVz7c3nUc3LnTt8_1mg
     

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