1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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Undiagnosed Diseases Program at the NIH

Discussion in 'Active Clinical Studies' started by Advocate, Jan 14, 2010.

  1. Advocate

    Advocate Senior Member

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    U.S.A.
    I keep hoping that Dr. Gahl will announce that his program continued to research the etiology of the disease that killed Summer Stiers (New York Times magazine cover story). I'd like for him to announce that they now know what caused Stiers' illness and her early death. She wanted her stay at the clinic and her death to help someone else.

    Well, Dr. Gahl doesn't mention her. Nevertheless, here's a report on the program.

     
  2. FernRhizome

    FernRhizome Senior Member

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    Thanks for posting this Advocate! One of my doctor's suggested I apply to UDP because my case has a few unusual components (such as losing half my bone density). I did call them and get the application materials but my bone specialist is on the NIH board and didn't think we'd learn anything more and I knew I'd have to give up gallons of blood among other things...so I never pursued it but it is interesting to read about where it is now, a year later. ~FernRhizome
     
  3. Julia Rachel

    Julia Rachel

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    California
    This is an INCREDIBLE resource and a gift. Thank You.
    Blessings,
    Julia
     

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