You mean that death cann't be cured with a dose of CBT and GET to convince you to think you are alive!If you are dead you will no longer be classified as having CFS.
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You mean that death cann't be cured with a dose of CBT and GET to convince you to think you are alive!If you are dead you will no longer be classified as having CFS.
There is also this same issue for some people when they get the illness. I didnt have PEM with exercise at the start of this illness... PEM was only noticable after almost a year. I had all the viral symptoms but no exercised induced PEM.
thou obviously some are missing being diagnosed due to not meeting criteria..even so i personally want quite strict criteria for ME. It is only then that biomarkers are more likely to be found..so everyone with this illness can then be picked up. Till then, there are going to be people not getting a right diagnoses.
(doctors blamed viruses for my first year of what I know now was ME). Like yourself, the episodes got more and more common and longer and longer.. till I was permanently sick and bedridden ..
Due to my ME history..i call myself a sudden gradual onset as when a bout hit me..it was badly (sending me to bed) and suddenly but things didnt became consistant till over time. I dont know if I had a reactivating virus in which ended up triggering ME.. or if those viral symptoms were on and off ME.
The Development of a Revised Canadian Myalgic Encephalomyelitis
Chronic Fatigue Syndrome Case Definition
1Leonard A. Jason, 1Meredyth Evans, 1Nicole Porter, 1Molly Brown,
1Abigail Brown, 1Jessica Hunnell, 1Valerie Anderson, 1Athena Lerch,
2Kenny De Meirleir and 3Fred Friedberg
American Journal of Biochemistry and Biotechnology 6 (2): 120-135, 2010
Meeting research versus clinical criteria: Table 1
provides all the symptoms as specified in the Revised
Canadian ME/CFS case definition. Some meet full
criteria whereas others who are very symptomatic do
not meet full criteria. We argue as we did with the
Pediatric case definition (Jason et al., 2006) that those
that meet full criteria are more homogenous and might
be best used for research purposes and we now classify
these individuals as meeting the Research ME/CFS
criteria. Still, others might have the illness but not meet
one of the required criteria. We classified such
individual as meeting Clinical ME/CFS criteria. These
individuals needed to have six or more months of
fatigue and needed to report symptoms in five out of the
six ME/CFS symptom categories (one of which has to
be post exertional malaise, as it is critical to this case
definition). In addition, for autonomic, neuroendocrine
and immune manifestations, adults must have at least
one symptom in any of these three categories, as
opposed to one symptom from two of the three
categories. We also have a category called Atypical
ME/CFS, which is defined as six or more months of
fatigue, but having two to four ME/CFS symptoms.
There is also a category called ME/CFS-Like, which
involves exhibiting all criteria categories but for a
duration of fewer than 6 months. Further, a person
could be classified as having ME/CFS in remission if
the person had previously been diagnosed with CFS by
a physician but was not currently meeting the Research
ME/CFS Criteria, Clinical ME/CFS criteria, or Atypical
ME/CFS criteria and must have 0 or 1 classic ME/CFS
symptoms.
see:We will determine whether increases in inflammatory cytokines, a growth factor, and nitric oxide, or blood cell changes are correlated with the extent of reduced physical ability that can be measured during a second exercise test taken after induction of postexertional malaise.
(they were aware of it from this page:Wheeler E.O. (1950), Neurocirculatory Asthenia et.al. - A Twenty Year Follow-Up Study of One Hundred and Seventy-Three Patients., Journal of the American Medical Association, 25th March 1950, p.870-889 (Contributors to the study: Edwin O.Wheeler, M.D., Paul Dudley White, M.D., Eleanor W.Reed, and Mandel E.Cohen, M.D.)