Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Underactive thyroid

Discussion in 'Thyroid Dysfunction' started by Jemima37, May 11, 2017.

  1. Jemima37

    Jemima37 Senior Member

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    UK
    Well I'm going to re test the electrolytes doing the 24 hour urine so hopefully that will show my sodium and potsssium is ok. I'm going to do it next week once this crash passes a bit that I'm stuck in.

    At the time I tested my cortisol it was January and I'd had a horrific December where my SADs hit hard and I had 6 weeks of hellish anxiety and depression out of nowhere. Gp had suspected SADs in previous years but wow this winter was obvious. I did the cortisol test 12 th January so probably not the best time lol!

    I just get anxious with needles as I've a fainting phobia since the big panic attack doing my bloods with the nurse and I felt faint.

    I'm struggling with awful fatigue this week. I just feel very drained, weak, woozy and a tad off balance. I didn't sleep well last night due to nausea which I'm sure is the medication I'm weaning off.

    I do need to drink more as I have felt in myself a dry dehydrated body feeling so maybe that's adding more problems. I need to up my water and stop worrying about the electrolytes. I just did too much reading a ee months ago when my results were low and it made me afraid to drink a lot.

    I worry because if my agoraphobia I'm not doing enough to get myself well. My friend says that's not true as I've had my gp out all of last year and lots of tests. I've got my thyroid treated. Recently though my fatigue feels worse and I've felt worse so I worry my agoraphobia and social anxiety is stopping me seeing my gp to get the help I may need. This may just be a crash but my anxiety makes me worry I'm neglecting myself. My anxiety right now is making me struggle socially so gp at my house scares me incase I panic infront of him and panic if he wants to do bloods. Just feeling so ill makes me too afraid to see him. Where as last year I would ask him to visit despite my social anxiety because I wanted to make sure I was ok. I'm worrying myself silly it's my electrolytes, or I'm riddled with cancer and slowly my body is shutting down I'm 37 and I've 3 children who need me and I'd have done any test and gone to any hospital appointment to make sure I was well for them but the last 6 months I've just lost that and now feel too exhausted to cope with the anxiety of appointments even at my house I know I sound silly.

    Thank you for your support today it's meant a lot.
    Julie
     
  2. Jemima37

    Jemima37 Senior Member

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    Thank you for your help.

    That's my fear it iron overload with how ill I feel My gp said as ferritin was 57 and my transferrin rate was normal he wasn't worried.

    My fatigue is worse this week and my anxiety about my health has been all over the place.

    Thank you
    Julie
     
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  3. Jigsaw

    Jigsaw Senior Member

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    @Crux

    Thanks for that :) That makes sense.

    @Jemima37 - I don't suppose you were using zinc for your cystic acne, were you? Only zinc works against copper, and vice versa, so whenever you take one, you need the other to counteract. 1:10 copper to zinc ratio is the generally accepted norm. If you were taking zinc without copper, your copper reserves would have become depleted, and what Crux is saying about low copper = low neuts would then make sense.

    However, elevated zinc and low copper don't fit with the low zinc-elevated cortisol scenario.
     
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  4. Jigsaw

    Jigsaw Senior Member

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    Hi Julie,

    There's no point in me saying "No need to worry!" because no-one with anxiety CHOOSES to feel it, and we don't worry because we think we "need" to :)

    All I will say is that you're not alone, and there are always loads of us on here you can talk to. I think you're doimg LOADS to help yourself, and when you've had a look at some of the iodine info, you might start feeling a bit more optimistic about feeling better again.

    And truly, who better to show your difficulties to than your GP? Honestly, please remember it's their JOB to take care of people with less than perfect health, they've pretty much seen everything, and a panic attack or syncope isn't going to phase them one bit.

    Your agoraphobia and anxiety WILL pass, at some point. It isn't permanent - few things are. Just tell yourself you're doing your best, which is true, you ARE, and that this will pass, because it always does.

    You've had a terrible time, and lesser people than you would have given up completely. You haven't, or you wouldn't have come here today :)


    Yes, more water is DEFINITELY a good idea! - it will help with detoxing from the Mirt as well. It might even ease your nausea a bit. Ginger biscuits are supposed to be good for nausea, or ask your GP for something that melts in your mouth instead of having to swallow it, like Buccastem or Ondansetron. They might not want to give you Ondanseteon (Zofran Melts, 4 or 8mg), but most will prescribe Buccastem with no problem.

    And it doesn't sound at all "silly"! :hug: You're doing your best, and that's all anyone can do. It's very hard for people to understand what no energy feels like, but ask them if they'd be able to sail through their day if they had 100 tons of concrete strapped round their arms and legs and middle. If you can't DO things, it's because you CAN'T, not because you "won't".

    Please be kinder and more understanding to yourself. It's the least you deserve.

    J x
     
  5. Kenjie

    Kenjie Senior Member

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    New Zealand
    Hi. I am from NZ. I am hypothyroid. Underactive since giving birth dec 2011. Although was not diagnosed til march 2012. Did not start medication til august 2012. During that time had aweful fatigue and brain fog. I was on Euroxsyth something like that then changed to levothyroxine 50mcg in 2014 so i could lose weight. Been on levo ever since til the present day.

    All my t4 t3 levels are normal but my antibodies are above 300 iu/ml high range. (Anti-thyroglobulin).

    The past 6 months ive been very unwell with hot flushes, dizzy spells, near fainting spells, inbalance, low blood pressure, nausea, sometimes loss of appetite, fatigue, body totally out of wack, have also had bacterial infections although those have calmed down at the moment, pressure in forehead been there 6 months, pressure behind my eyes. Low heart rate. General feeling of unwell. Ohhh and not to mention the adrenal type feeling that rushes through my chest even when im not anxious!

    Can someone please shed some light on what might be happening in my body?

    Ent told me 3 days ago my sinuses are clear even though i have the 'symptoms'.

    Ive seen so many people and noone has been able to tell me what is wrong with me. I feel very lost now and dont know where to turn next.

    Can anti thyroid attack your body even the other levels are normal?
     

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