1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
Discuss the article on the Forums.

UK/US/Canada/Australia ME and/or CFS Campaign Discussion Question

Discussion in 'Action Alerts and Advocacy' started by athomeinRwanda, Mar 5, 2011.

  1. athomeinRwanda

    athomeinRwanda

    Messages:
    24
    Likes:
    3
    Open for discussion:

    The CDC, the NHS, the MRC and other government bodies are running rings around us so long as they continue to manipulate the definition of ME and/or CFS.

    We need a campaign to require them to accept the Canadian Consensus Criteria (http://www.cfids-cab.org/MESA/ccpccd.pdf) as THE definition of ME ("CFS"). If we have agreement on which definition is the required standard throughout all medical and research practice in the UK, the US, Canada and Australia (and other countries), then what name they give it is less important.

    - unglamorous, but until we have a government accepted and approved definition of the illness that applies across the board, all our campaigns for more research funds, training of doctors, and more recognition of the disease are weakened by the definition problem. What do you think?


    https://www.facebook.com/note.php?note_id=203593889651947

See more popular forum discussions.

Share This Page