The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
Discuss the article on the Forums.

UK: Telegraph article 5th June 2017

Discussion in 'General ME/CFS News' started by Kate_UK, Jun 5, 2017.

  1. Kate_UK

    Kate_UK Senior Member

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  2. Barry53

    Barry53 Senior Member

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    I guess it warrants 3 out of 10, which is better than the usual 0 out of 10.
     
  3. wdb

    wdb Senior Member

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    I'd go maybe 6/10 it had some good bits, it linked to Jen Brea's talk and MEA, much of it was technically factual but it promoted a lot of nonsense treatments with very questionable evidence bases. We don't need more funding for rubbish treatments we need to fund quality research to find real treatments.
     
  4. Esther12

    Esther12 Senior Member

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    What a weird article. It's just about one person's experience? [edit: Actually, I think I can forget this is quite normal filler in papers.] Frsutrating that we struggle to get coverage of the issues with PACE when this is getting in the papers!
     
    Last edited: Jun 5, 2017
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  5. trishrhymes

    trishrhymes Senior Member

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    Sound like she was one of the lucky ones who got it fairly mildly and has gradually improved. She chooses to attribute that improvement to the series of unproven treatments she has tried. There is no evidence for any of these treatments. It's a pity that wasn't pointed out.
    At least it pointed to Jen's talk and the MEA. Could be worse.
     
  6. arewenearlythereyet

    arewenearlythereyet Senior Member

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    Quite bland and nothing to get excited about , apart from I HATE IT WHEN THEY TALK ABOUT MOOD SWINGS!

    hopefully she can remain in remission.
     
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  7. slysaint

    slysaint Senior Member

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    "But, as Jude notes: “My diagnosis was mild. ME can be moderate or severe leaving people bed-bound. I can’t imagine what that is like. I know I have been relatively fortunate.”

    think this is the important bit; plus she says she is not 100% and still has to be careful.

    eta: also nice to see they are not directing people to AfME for advice!
     
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  8. Demepivo

    Demepivo Dolores Abernathy

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    Most articles and clips for radio & TV focus on one person's "journey". Journalists don't usually like going into the science, it shows up what they don't know. ;)
     
  9. Esther12

    Esther12 Senior Member

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    I'm so detatched from contemporary culture that I can forget what's normal. I've seen half an episode of one of those Simon Cowell reality TV shows, and it scared me!
     
  10. Barry53

    Barry53 Senior Member

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    Only takes about half a minute for me.
     
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  11. TiredSam

    TiredSam The wise nematode hibernates

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    Can find some things in it I don't agree with, but also some good bits and a vast improvement on the type of article we used to get. Definitely a move in the right direction, SMC hardly get a look in. Until recently they seemed to have an absolute veto on any ME article in the national UK press, now there are links to Jen Brea and MEA. It would have been better in the arts section, as it was basically about a musician with a new album out.
     
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  12. Hilary

    Hilary Senior Member

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    On the whole I think it's a reasonable article as it reflects one person's experience and doesn't claim to do anything else. I have tried many different 'treatments', some of which have been helpful and some not - with those that have, it may just have been the placebo effect but frankly, I don't care - if it helps, then that's fine by me.

    While we hang about waiting for evidence-based treatment :sleep: (probably still years away) I have always wanted to try things that I felt might help even a little, as there's currently nothing on offer from my GP....... Apart from anything else, it helps me to feel a little more in control of matters. Maybe, as with Jude, if one is only mildly affected and it isn't longstanding, there is more scope for various therapies to have some beneficial effect?? (This is based entirely on instinct and not on intellect which appears to have retired for the night already.... time for bed I think:sleep::sleep:..)
     
    Last edited: Jun 6, 2017

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