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Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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UK: Solicitor rides from Hampshire to Edinburgh for CFS Research Foundation

Discussion in 'Action Alerts and Advocacy' started by Kati, Apr 26, 2010.

  1. Kati

    Kati Patient in training

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    http://www.dailyecho.co.uk/news/8119155.Man_s_marathon_bike_ride_in_brother_s_memory/

    A HAMPSHIRE man has embarked on a 600-mile cycle ride he hopes will raise 10,000 for research into chronic fatigue syndrome.

    Solicitor Alistair Houghton, 34, is doing the marathon in memory of his brother Ross who was only 29 when he died after an eight-year battle against the distressing disease.

    Alistair and his brother-in-law Richard Knight expect to take eight days to make the marathon journey from Totton in Hampshire to Edinburgh.

    Chronic fatigue syndrome (CFS) is also known as myalgic encephalomyelitis (ME). There are thought to be at least 150,000 cases in the UK.

    Money raised by the cycle ride will go to the CFS Research Foundation, which funds research into the causes of ME and potential cures.

    To make a donation visit everyclick.com/cyclechallengeforme.
     
  2. Adam

    Adam

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    Sheffield UK
    What a star. Imagine cycling 600 miles!
     
  3. ukxmrv

    ukxmrv Senior Member

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    London
    Oh no not the "distressing disease" again. Distressing - I'll give them distressing...
     
  4. Kati

    Kati Patient in training

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    Adam, get this disease off my back and I will ride 600 miles!
     
  5. MEKoan

    MEKoan Senior Member

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    C'mon now, we're being a bit muted in our appreciation, don't you think?

    Many thanks to these two great guys who are doing what we cannot!!!

    We thank you

    :hug:

    and we salute you

    :victory:

    and we support you!

    :Sign Good Job:
     
  6. Robin

    Robin Guest

    UK man doing charity ride for ME in memory of his brother

    http://www.dailyecho.co.uk/news/8119155.Man_s_marathon_bike_ride_in_brother_s_memory/

     
  7. liverock

    liverock Senior Member

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    UK
    Brilliant!
     
  8. Kati

    Kati Patient in training

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    There is a post already about it
     
  9. *GG*

    *GG* Senior Member

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    Concord, NH
    Is this a good charity? will this help bring more attention in the UK?

    GG
     
  10. biophile

    biophile Places I'd rather be.

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    Wessely and charity

    Simon Wessely has done a number of bicycle rides for charity, right? Have any of them been for ME/CFS? I'll take a wild guess and say no, unless someone else can say otherwise.
     
  11. Mark

    Mark Former CEO

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    Sofa, UK

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