Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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UK research?

Discussion in 'Other Health News and Research' started by Vicki Cole, Aug 18, 2017.

  1. Vicki Cole

    Vicki Cole

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    U.k
    I'm in the UK, Suffolk, and I was wondering if there is a set way to become involved in research here (if there is any?!).
     
  2. charles shepherd

    charles shepherd Senior Member

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    If you bookmark the Research pages on the MEA website:

    http://www.meassociation.org.uk/research2015/

    there is a section on volunteering for ME/CFS research - which we update whenever we are notified about biomedical research studies that require people with ME/CFS

    The ME/CFS Biobank:

    http://cureme.lshtm.ac.uk

    which is funded by the MEA Ramsay Research Fund requires blood donor volunteers, including people with severe/housebound ME/CFS, but not at the moment

    You are in an ideal position here re the ME Biobank because our research nurse lives in Cambridge and we have funds available to arrange for blood samples to be taken at a person's home if necessary

    The samples are then sent to the ME Biobank at the Royal Free Hospital in Hampstead, North London

    Hope this is of some help…….

    Dr Charles Shepherd
    Hon Medical Adviser, MEA
     
    62milestogojoe and Vicki Cole like this.
  3. Vicki Cole

    Vicki Cole

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    Thanks so much! I'm on to it right now!
    Sincerely!
     
  4. Sbag

    Sbag

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    it says the samples go to UCL. If I were going to be in London would giving blood there be an option?
     
  5. charles shepherd

    charles shepherd Senior Member

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    The ME Biobank is a sub-biobank within the main UCL (= University College London) Biobank at the Royal Free Hospital (which comes under the UCL umbrella)

    Samples can be taken in London - when more are needed

    CS
     
  6. charles shepherd

    charles shepherd Senior Member

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    UCL Biobank at Royal Free Hospital

    https://www.ucl.ac.uk/biobank/uclpphysicalbiobank

    The 'top ten' collections:

    ME/CFS is now in second place!

    (But it's not a competition)

    Top 10 Sample Collections

    Study Name Study type Number of Samples
    1
    UCL Bioresource NIHR-UCL Bioresource 71,678
    2 MECFS U.S. National Institutes of Health 26,341
    3 DARE Imperial College NHS 19,843
    4 IMON UCL 11,636
    5 HCC UCL 4,856
    6 NET UCL 3,742
    7 Nephrology Royal Free London 3,640
    8 TACE2 UCL 2,884
    9 Predict NIHR -UCL 2,385
    10 Epicure MRC-UCL 2,250


    Dr Charles Shepherd
    (Chairman - ME Biobank Steering Group)
     

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