New era for ME/CFS research as top cytokine study attracts media headlines
The immune systems of patients who have recently developed ME/CFS look markedly different from those who have been ill for much longer, according to a major new study from Drs. Ian Lipkin and Mady Hornig at Columbia University. This shift in immune function hadn’t been seen before.
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UK people under Dr Enlander's care: what treatments can you have in the UK?

Discussion in 'ME/CFS Doctors' started by Sasha, Feb 3, 2012.

  1. Sasha

    Sasha Fine, thank you

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    I see Dr Enlander will be in London in March for a meeting at the House of Lords and I've seen previously that he sometimes sees patients when he's in London.

    I'm desperate for an ME specialist: I simply don't know enough to guide my own treatment. I wonder, though, which of the treatments listed on his website are actually available to patients in the UK even if he prescribes them. I'm not clear on whether your GP needs to agree anything that he would prescribe, or whether some stuff is simply not cleared for use in the UK at all (such as Ampligen).

    Are there any UK patients of Dr Enlander who can tell me what they're getting, what they wanted but couldn't have, and how it all works?! :confused:
     
    justy likes this.
  2. maryb

    maryb iherb code TAK122

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    I wonder how treatment would work long distance?
     
  3. maryb

    maryb iherb code TAK122

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    Anybody???
     
  4. missmilki

    missmilki

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    I'd also be curious to hear an answer to this question!
     
  5. Nielk

    Nielk

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    I think that if he sees you once, he can continue treating you remotely. But, he has to see you at least once.
     
  6. Enid

    Enid Senior Member

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    Sasha - I don't know anyone locally in Kent who may have such good luck - it just seems speaking to the House of Lords will cut through this UK prejudice as anything other than "all in your mind" will help the utter ignorance here.
     
  7. Abha

    Abha Abha

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    Hi sasha,
    I have just seen this on an ME Association site... "The Newry and Mourne Group has also thrown its weight behind an event in Belfast on Thursday, March 1 when New York-based physician Dr Derek Enlander will be speaking at the Lansdowne Court Hotel, 657 Antrim Road, Belfast BT15 4EF, at 7.30pm. Dr Enlanders clinic at Mount Sinai Hospital specialises in research and treatment of Chronic Fatigue Syndrome and Fibromyalgia. Dr Enlander was born in Co Tyrone and trained in Belfast.

    If you would like to attend this event, please let the organisers know in advance so an idea of numbers can be obtained. Email: megray29@googlemail.com or tel: 07880 842 586 or 07749 653 573"..I'm sure you can get the info you want from there.A new N.Ireland ME Alliance(MEANI)has been set up(Joan Mc Parland/contact)Tonight too, Tues.Feb 21st UTV will have another programme on ME.
     
  8. Jenny

    Jenny Senior Member

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    Dr Enlander has appointments available in South London on 5 March.

    Apparently he will be bringing his protocol with him and you can discuss doing GcMaf.

    Email his office for details.

    I asked his office about this several weeks ago and they've only just got back. I was going to make an appointment but it would all be too expensive, given that I'm paying for other treatments as well at the moment. Consultation is 200.

    Jenny
     
  9. Jenny

    Jenny Senior Member

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    Hi HWME

    Thanks very much for your description of your treatment - I'm so glad it's helped you. Are you managing to stay fairly well now you are off the treatment?

    It's even more expensive than I thought though!

    Jenny
     

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