Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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UK patient surveys by AfME and MEA time for fresh ones?

Discussion in 'General ME/CFS Discussion' started by NelliePledge, May 14, 2017.

  1. NelliePledge

    NelliePledge plodder

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    hi all
    http://journals.sagepub.com/doi/full/10.1177/1359105317703787 (=online version)

    http://forums.phoenixrising.me/inde...-safety-of-get-cbt-and-pac.51405/#post-849218

    the surveys referred to here have been important in providing hard evidence of patient views around management including CBT and GET and also on health and social care services. They are all from a few years ago now though. The AFME one published in 2015 based on 2014 data. Things have changed with IAPT and MUS affecting ME patients. Also the lack of action from NICE around GET. Both MEA and AFME should be getting fresh surveys done. I'm going to email them to see if this is on their plans and will report back any response.
     
    Last edited: May 14, 2017
  2. Solstice

    Solstice Senior Member

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    Would be good yeah, were those previous surveys from AfME unbiased btw?
     
  3. NelliePledge

    NelliePledge plodder

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