Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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UK-only petition hits 10,000 target & still rising - government must now respond! Still time to sign

Discussion in 'General ME/CFS News' started by Sasha, May 26, 2016.

  1. Sasha

    Sasha Fine, thank you

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    Edit: Target now hit! :balloons:

    There've been some threads about this but the titles didn't make it clear that this is a UK-only petition aimed at getting the UK govt to respond, which happens when it hits 10,000 signatures - which it very nearly has done!

    It says:

    Just 700 to go now [edit: 125 now!] - please sign and share, if you haven't already and let's get it across the finish line. :)

    https://petition.parliament.uk/petitions/118175
     
    Last edited: May 27, 2016
  2. Scarecrow

    Scarecrow Annie Gsampel

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    I have no memory of signing this but I'm not allowed to sign it again. :D
     
    moosie, John Mac, Dolphin and 5 others like this.
  3. AndyPR

    AndyPR Cookies for Tired Sam

    Bob and Sasha like this.
  4. Sasha

    Sasha Fine, thank you

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    AndyPR likes this.
  5. daisybell

    daisybell Senior Member

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    It tells me I can't sign it again!!
     
    moosie, Dolphin and AndyPR like this.
  6. AndyPR

    AndyPR Cookies for Tired Sam

    Thank you for signing it already?

    9679 now @Sasha :)
     
    Sasha likes this.
  7. daisybell

    daisybell Senior Member

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    New Zealand
    I must have signed it already!! Gotta love this MEmory.....
     
    AndyPR likes this.
  8. MEMum

    MEMum Senior Member

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    9692 now
     
    AndyPR and Sasha like this.
  9. Sasha

    Sasha Fine, thank you

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    Motoring home! This needs only 125 more signatures...
     
    AndyPR and AndyPandy like this.
  10. meandthecat

    meandthecat Senior Member

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    West country UK
    74 to go
     
    Sasha, AndyPR and AndyPandy like this.
  11. Sean

    Sean Senior Member

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    Can't sign coz not UK citizen. But yay team! :woot: :thumbsup:
     
    Owl42, Sasha and AndyPandy like this.
  12. Hilary

    Hilary Senior Member

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    Signed and sent on
     
    Sasha and AndyPR like this.
  13. AndyPR

    AndyPR Cookies for Tired Sam

    10,096 :thumbsup::balloons::woot:
     
    Owl42, John Mac and Sasha like this.
  14. Sasha

    Sasha Fine, thank you

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    Fantastic! I've changed the title thread.

    This would have been unthinkable a year ago, that we could get 10k signatures.

    Looking forward to that government response!
     
    moosie, John Mac and GreyOwl like this.
  15. AndyPR

    AndyPR Cookies for Tired Sam

    It is great to hit that number and obviously it all adds to the growing awareness but I am sceptical about what kind of response we will get. As things stand at the moment, I can easily see their response being along the lines of "Currently, the best evidence points to CBT/GET as being safe and effective treatments, therefore nothing will change", I would absolutely love to be proved wrong though, obviously.
     
  16. Hilary

    Hilary Senior Member

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    Although I would like @AndyPR's view to be wrong, I am also concerned that we will effectively be fobbed off - but let's wait and see. Maybe we should be going for the hundred thousand??;)
     
    Yogi and AndyPR like this.
  17. Sasha

    Sasha Fine, thank you

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    We may get fobbed off with a stock answer but even so, I think it's good to shove this in the govt's face!
     
    Hilary and AndyPR like this.
  18. AndyPR

    AndyPR Cookies for Tired Sam

    My wife can tell you how often I'm wrong so hopefully that will be the case here ;)
    100 thousand would be so awesome but it's taken 3.5 months to get 10 thousand and the petition is only open until 13th July so I don't see that happening. But the good thing is the raised awareness, even just from people sharing it on social media and elsewhere.
     
    Hilary and Sasha like this.
  19. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    I was hoping this would get this far. Its a big step, not just for UK patients, but for all patients around the world.
     
    Hutan, Hilary and Sasha like this.
  20. snowathlete

    snowathlete having a NICE day for once

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    I think this petition, a few others recently and the demonstrations etc. really show that patients and their supporters have begun to believe that we can be heard, that we can make change happen. It is worth signing these petitions, worth demonstrating, writing letters, etc. That is such an essential step that we have made. We must keep taking opportunities.
     

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