New era for ME/CFS research as top cytokine study attracts media headlines
The immune systems of patients who have recently developed ME/CFS look markedly different from those who have been ill for much longer, according to a major new study from Drs. Ian Lipkin and Mady Hornig at Columbia University. This shift in immune function hadn’t been seen before.
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Uk Nursing Times - APPG report into M.E.

Discussion in 'Action Alerts and Advocacy' started by Min, Mar 17, 2010.

  1. Min

    Min Guest

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  2. jace

    jace Off the fence

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    Thanks, Min.

    Very supportive article, and the one comment is excellent.
     
  3. Mithriel

    Mithriel Senior Member

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    The comment is very good.

    I am not too sure about the APPG report though, it seems to have ignored a lot of the evidence and is too accepting of the clinics. But in a strange way we might win this one because all people will take from it is "not enough medical provision" whereas we don't even want what is being provided.

    Mithriel
     
  4. Min

    Min Guest

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    I think nurses need to be educated, not only because so many of them develop M.E. but because they are so 'hands on' and can be so cruel if they believe we are just malingering scum instead of patients with a serious neurological illness in tremendous pain.

    I've had some horrible experiences with them at times when I've been very vulnerable e.g. just after an operation & during procedures, and am now terrified of them (although some are very nice) .
     
  5. Mithriel

    Mithriel Senior Member

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    Yes, they can be very cruel if they choose. DD is a nurse and she knows there are different types.

    My friend had radiotherapy then developed bad diarrhoea and vomiting. She was taken into the cancer ward and told she would be on a drip till the Monday. However a junior doctor came on on Friday and said she could go home the next day.

    She insisted she wasn't well yet but the nurse was very offhand and unsympathetic and refused to get a doctor or to set up another drip. She obviously thought it was a tummy bug that my friend was making too much fuss about. Of course she actually had bad radiation enteritis which can be fatal. The lining of her intestines was destroyed and she was badly dehydrated.

    When her consultant came back and discovered what had happened she was furious. It was a case that the nurse, having decided that this patient was making a fuss about nothing, ignored the evidence in front of her.

    In ME, it happens all the time. I am sorry you had these experiences Min.

    Mithriel
     

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