1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Hyperparathyroidism: An Often Overlooked Differential Diagnosis to ME/CFS
Andrew Gladman puts hyperparathyroidism under the microscope, exploring what the disease is, how it can mimic ME/CFS in presentation and how it is treated.
Discuss the article on the Forums.

Uk Nursing Times - APPG report into M.E.

Discussion in 'Action Alerts and Advocacy' started by Min, Mar 17, 2010.

  1. Min

    Min Senior Member

    Messages:
    1,293
    Likes:
    1,576
    UK
  2. jace

    jace Off the fence

    Messages:
    855
    Likes:
    170
    England
    Thanks, Min.

    Very supportive article, and the one comment is excellent.
     
  3. Mithriel

    Mithriel Senior Member

    Messages:
    564
    Likes:
    41
    Scotland
    The comment is very good.

    I am not too sure about the APPG report though, it seems to have ignored a lot of the evidence and is too accepting of the clinics. But in a strange way we might win this one because all people will take from it is "not enough medical provision" whereas we don't even want what is being provided.

    Mithriel
     
  4. Min

    Min Senior Member

    Messages:
    1,293
    Likes:
    1,576
    UK
    I think nurses need to be educated, not only because so many of them develop M.E. but because they are so 'hands on' and can be so cruel if they believe we are just malingering scum instead of patients with a serious neurological illness in tremendous pain.

    I've had some horrible experiences with them at times when I've been very vulnerable e.g. just after an operation & during procedures, and am now terrified of them (although some are very nice) .
     
  5. Mithriel

    Mithriel Senior Member

    Messages:
    564
    Likes:
    41
    Scotland
    Yes, they can be very cruel if they choose. DD is a nurse and she knows there are different types.

    My friend had radiotherapy then developed bad diarrhoea and vomiting. She was taken into the cancer ward and told she would be on a drip till the Monday. However a junior doctor came on on Friday and said she could go home the next day.

    She insisted she wasn't well yet but the nurse was very offhand and unsympathetic and refused to get a doctor or to set up another drip. She obviously thought it was a tummy bug that my friend was making too much fuss about. Of course she actually had bad radiation enteritis which can be fatal. The lining of her intestines was destroyed and she was badly dehydrated.

    When her consultant came back and discovered what had happened she was furious. It was a case that the nurse, having decided that this patient was making a fuss about nothing, ignored the evidence in front of her.

    In ME, it happens all the time. I am sorry you had these experiences Min.

    Mithriel
     

See more popular forum discussions.

Share This Page