UK NHS provide rituximab for free for lupus patients. But not for ME/CFS patients. Why?

[justy]

@Gingergrrl - I am wildly excited and happy for you. wont go off topic anymore.

 

[Gingergrrl]

@Gingergrrl - I am wildly excited and happy for you. wont go off topic anymore.

Thank you @justy and after I have the 3-day split dose of IVIG, I plan to post a detailed update in a new thread. Hoping to do this in the next few weeks.

 

[Jo Best]

Posted today by IFR about public meeting in January 2017 at Norwich Research Park, UK - http://www.ifr.ac.uk/news/events/2017/01/mecfs-biomedical-research/

Dr Fluge is visiting Norwich to collaborate over another Rituximab trial being carried out on the Norwich Research Park. Professor Simon Carding from the Institute of Food Research (IFR) and University of East Anglia will also be talking about at the event about this, as well as research in his own group, who are looking for causes and treatments for ME in the gut and its microbial communities. The Norwich Research Park is establishing itself as a hub for biomedical research into ME, in the UK and Europe and through international collaborations. http://www.ifr.ac.uk/news/events/2017/01/mecfs-biomedical-research/

(Fane Mensah from the UCL team spoke there October 2015 with Mady Hornig).