I'm so sorry to hear this story CG. Like you, I come from an area where there have been ME related deaths, and I remember the period this document covers. This was when I started getting involved in ME advocacy. We thought even then that change would (must!) come soon because people's suffering was so obvious and extreme. How little we knew. It is now twenty years ago. It seems so recent and I remember those people so clearly. I am so angry that our reasonable and just needs have been neglected in such a disgraceful way.