Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
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UK members - Please take this Survey on Freedom of Information

Discussion in 'Action Alerts and Advocacy' started by MeSci, Jan 18, 2016.

  1. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    This is from the organisation 38 degrees, and is probably only available to people in the UK.
    Note - you may want to say 'don't know' to some questions where such an option is not provided. There is a box at the end where you can state this, where it asks for any other comments or similar.
     
  2. Sasha

    Sasha Fine, thank you

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    @MeSci, would you like to edit your thread title to make it clear this is a call to action, rather than the results of a survey?

    Maybe something like "Do this 38 Degrees survey to protect Freedom of Information Act"?
     
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  3. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    Good point - have changed it - hope this is better.
     
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  4. Sasha

    Sasha Fine, thank you

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    I'd be inclined to mention 38 Degrees in the title, since they're well known and people will know they won't be wasting their time with a survey whose results won't be looked at. Up to you, though!
     
  5. snowathlete

    snowathlete

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    I filled it in and mentioned the PACE trial FOI nonsense.
     
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  6. Countrygirl

    Countrygirl Senior Member

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    I have filled it in and also referred to its relevance to the PACE trial.
     
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  7. Sasha

    Sasha Fine, thank you

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    Same here.
     
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