Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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UK: ME patient and pharmacist wants your input for AfME pharmacists' guide

Discussion in 'General ME/CFS News' started by Sasha, Oct 12, 2015.

  1. Sasha

    Sasha Fine, thank you

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    Interesting:

    https://aprescriptionforme.wordpres...-crowd-sourcing-articles-for-resource-on-m-e/

     
    Seanko likes this.
  2. eafw

    eafw Senior Member

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    maybe she'd have got more responses posting on here, I've left a comment there anyway.
     
    ukxmrv likes this.
  3. Sasha

    Sasha Fine, thank you

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    I picked this up via #MEAction, I think, so she's done a good job of getting it out on the wire.

    All roads lead to Rome. :)
     
    SOC likes this.
  4. eafw

    eafw Senior Member

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    The MEaction call is recent though (?), and the original blog post from June so that's why it looks like there's not much response given all that time.
     
  5. Sasha

    Sasha Fine, thank you

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    Oh! I didn't realise that.

    Yes, you're right!
     
  6. Seanko

    Seanko Senior Member

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    @Sasha Emily has a very good blog, with lots of resources for UK based patients.

    She was a medical student when she became ill with ME/CFS and was undiagnosed for many years. She later trained to become a pharmacist whilst ill.

    She is one of the nicest people I knwo within the British ME/CFS community.
     
    SOC, Ellie_Finesse and Sasha like this.
  7. Sasha

    Sasha Fine, thank you

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    Seanko likes this.

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