Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
Discuss the article on the Forums.

UK ME biobank - joint project with MEA, MERUK & AfME

Discussion in 'General ME/CFS News' started by Sasha, Aug 10, 2011.

  1. Sasha

    Sasha Fine, thank you

    Messages:
    12,789
    Likes:
    34,217
    UK
    This was announced on the MEA site today. There's also a Q&A page.

    So, a good news day in the UK for a change - a patients' organisation boosting support for a translational ME research/treatment centre at the University of East Anglia and a biobank project.
     
  2. Firestormm

    Firestormm

    Messages:
    5,022
    Likes:
    4,826
    Cornwall England
    I think so too Sasha :)

    What criteria will be used to select donors?

    All selected donors must have received a diagnosis of M.E./CFS at some time in the past. However, as there are inconsistencies in how the diagnosis is made in primary, secondary or tertiary care, it is essential that all cases are newly assessed by a health professional trained in the diagnosis of M.E./CFS. Patients will be assessed on whether they fulfill the CDC-1994 (Fukuda) criteria and the Canadian 2003 criteria. :)

    Since cases meeting the Canadian criteria have been shown in most cases to also meet the Fukuda criteria, this will enable the sub-grouping of cases into those meeting and not meeting the Canadian criteria, throwing light on the appropriateness of the different classifications. In due course comprehensive phenotyping (Phenotyping =.categorizing patients based on their clinical information) of patients may enable categorisation of individuals according to other clinical criteria.

    Patients will be excluded from donating samples if they have
    recently used (in the preceding three months) drugs known to alter immune function, eg. anti-viral medications and vaccinations
    acute and chronic infectious diseases such as hepatitis B and C, tuberculosis, HIV (but not herpes virus or other retrovirus infection)
    other severe illness and mood disorders.
     
  3. Enid

    Enid Senior Member

    Messages:
    3,309
    Likes:
    859
    UK
    Yes good news indeed Sasha (and those involved working behind the scenes so to speak for years).
     
  4. justy

    justy Donate Advocate Demonstrate

    Messages:
    5,313
    Likes:
    12,098
    U.K
    At last good news in the U.K -you are so right Sasha -a good few days for us with the news about the centre in East Anglia too!
    Now we need to get people raising money and awareness of these 2 projects.
    I was going to say i could hear the death throes of the psychs but wouldnt want that to be misconstrued!

    Justy.
     
  5. Firestormm

    Firestormm

    Messages:
    5,022
    Likes:
    4,826
    Cornwall England
    There are several inaccuracies circulating on the ethernet about this joint project. This has not been funded by the MRC and will not therefore come out of the 1.5m biomedical research pot.

    It was a tri-charity initiative with a contribution also from a private donor and MEA member. Total cost to date around 175k.

    It is however hoped that those who do receive funding from the MRC will take advantage (initially) of the blood stocks and later of the tissue samples that will be available from this Biobank initiative.

    Check links and comments for details:

    New hope for research: http://www.meassociation.org.uk/?p=7540

    Questions and Answers: http://www.meassociation.org.uk/?p=7586
     

See more popular forum discussions.

Share This Page