Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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UK: Jen Brea wants eyecatching stats re UK ME prevalence, diagnosis, research, treatment

Discussion in 'Advocacy Projects' started by Sasha, Aug 14, 2014.

  1. Sasha

    Sasha Fine, thank you

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    UK
    Looks like Jen with her Canary in a Coalmine documentary (can't wait!) is going to be mentioning the UK.

    She just posted on FB:

    https://www.facebook.com/canaryfilm/posts/438195219651550

    I've got no reason to think that she reads Phoenix Rising or will see this thread so please post your responses on FB or presumably it's OK to use her main website contacts page:

    http://www.canaryinacoalminefilm.com/#!contact/c24vq
     
  2. Countrygirl

    Countrygirl ᗩᑎᑎIᙓ ᘜᔕᗩᙏᑭᙓᒪ

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    UK
    When reading the above, I ask what diagnosis,research and treatment????

    We are mis-diagnosed, mis-treated and no funding has been given for medical research over the decades in the UK.
     
  3. Leopardtail

    Leopardtail Senior Member

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    well, given yes, but mostly to Psychiatry
     

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