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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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UK: Is there a big ESA campaign we can join?

Discussion in 'Action Alerts and Advocacy' started by Sasha, May 17, 2012.

  1. Sasha

    Sasha Fine, thank you

    Having just been assigned by DWP's random outcome generator to the work-related activity ESA group when I don't have enough energy to feed myself when I get hungry, I'm looking for some big, fat campaign against the poor implementation of ESA that I can sign up to.

    I've already signed the occasional petition and whatnot and lots of organisations seem to be doing their own thing but is there some big, serious, trans-charity campaign going on that is capable of racking up numbers and influence?

    I'm particularly interested in the issue of people being inaccurately assessed (many campaigns have a whole lot of other issues but this has been a recurring problem for me during my ME life).

    I'm also interested in writing to my MP about my experience in such a way as to get the biggest benefit for everyone - again, is there some big MP-writing ESA campaign going on or do I just have to write my own letter?

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