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(UK) Esther Crawley and all the money she is getting from the NIHR

Discussion in 'Action Alerts and Advocacy' started by Dolphin, Feb 18, 2010.

  1. Dolphin

    Dolphin Senior Member

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    I came across this last night. From what I have seen in the past, Dr. Crawley does little biological testing - most of her studies are just questionnaires.

    http://www.nihr.ac.uk/files/Publications/296542_DeliveringHealthResearchReport_acc3.pdf


  2. Dolphin

    Dolphin Senior Member

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    Dr. Crawley previously dismissed concerns that GET could make people worse

    A similar percentage of the people who did GET under a NHS specialist reported it made them worse as the percentage made worse in other situations (there was no statistically significant difference) (both percentages were in low 30s)

  3. Min

    Min Senior Member

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    Is this different to her supposed 'data' collection study that AfME are (part?) funding?


    I live in the area she covers and have heard some heartbreaking stories from parents of her patients.
  4. Mithriel

    Mithriel Senior Member

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    Scotland
    This is the woman who claimed she was the only paediatrician working with children with ME in the UK a few days before Dr Nigel Speight, a great champion of children with ME for many years, was "involuntarily" retired.

    She makes my blood run cold.

    Mithriel
  5. Dolphin

    Dolphin Senior Member

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    Just to clarify:
    The AYME/AfME survey 2008 is nothing to do with that.

    As I recall, the AfME gave her (and Barts!) some money to review clinics. Given how dismissive she was of the reports of adverse reactions from GET (and we know that Barts would be similar), I don't think it was a good way to spend money.
    This review of services has taped into more money - but not sure it's the NIHR money as I think the NIH money is for children (could be wrong) while she is involved in a more review of clinics/services generally.

    Interesting.

    Some of the statements I've heard her say aren't as hardline as some people. But I think a problem is that lots of children will get better anyway in time and a bit of support. So she believes that this will work for all children as well as adults (who are less likely to get back to full/near full health with just management strategies).

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