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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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UK Dr recommendations?

Discussion in 'ME/CFS Doctors' started by Esther12, Mar 15, 2010.

  1. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    It is always advisable to edit material before publishing and to check sources, especially if you are relying on sources that are not up to date.

    You stated that Pinching is a "Director" of AfME. "Director" of a charity has a specific meaning in Charity and Company Law. Prof Pinching is not a "Director/Trustee" of AfME.

    We have agreed that he was their Medical Adviser and has, or is shortly standing down. Action for M.E. and Prof Pinching announced this some weeks ago.

    I accept that you have relied on an outdated reference source but I am more concerned that you have misstated that Prof Pinching is a Director of Action for M.E. and that you understand the difference.

    (The URL you have quoted for RiME is for the RiME legacy site. You may wish to note that RiME maintains a site at this URL: http://www.rime.me.uk )

    The "Directors" of Action for M.E. are its Trustees, as set out in the Company's Annual Report and Accounts. As Directors/Trustees they have specific legal responsibilities under Charity and Company Law. Prof Pinching, as a Medical Adviser (and soon to be former Medical Adviser), does not function in this role subject to the roles and responsibilities that charity Directors/Trustees are governed by. This is a very important difference.

    Thank you. I do not want any links to my sites or any material authored by me appearing on a site where there is no transparency about who owns the site and who is responsible for the content of the site.

    In the Disclaimer on my sites there is a clause which states that material authored by me may be reproduced elsewhere in full or in part as long as the source is credited, the date of publication given and link back to the specific posting from which the material has been extracted.

    However, I retain the copyright and I do not give permission for my material to be published on a site where the site owner is not prepared to be upfront about their identity and where the content requires checking for accuracy.

    Whether "they come for you" is not the issue.

    If you are the owner of the site, you are responsible for its content and any claims made within its content. Should readers of your site take issue with its content or have a query in relation to its content, they should be in a position to take this up with the site owner and they will expect it to be transparent who is responsible for the content and how to contact them.

    Someone has to be prepared to take responsibility for the content.

    I PMd you, yesterday.

    I note that you have a reference on your site to "Dr Crippen's" retirement as an NHS GP.

    When "Dr Crippen" posted on his blog, in early March, announcing his retirement, he stated that he had already retired several weeks previously.

    "Dr Crippen" was a senior practitioner in a GP practice where he had served for many years. By the time he announced that he had retired, in early March, the practice had already installed his replacement. So he had already left the practice by February.

    How much notice do you think a long serving GP in a senior position within a GP practice would need to give of a decision to retire, in order that a vacancy can be advertised, potential replacements interviewed and their period of notice served, before taking up their new post?

    I would have expected "Dr Crippen" to have tendered his decision to retire before the end of 2009 and before the "letter to the Guardian" campaign had been initiated.

    There is a great deal of misinformation and conspiracy hauled around the internet. If our concerns and our situation are to be taken seriously by professionals, politicians, government departments, the media and the public, we need to ensure that what we publish is accurate.

    We should also be prepared to accept responsibility for what we publish on the internet.

    Suzy Chapman
  2. helsbells

    helsbells Senior Member

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    LOL that is so true, I went to an entirely different hospital and the bow tie wearer was the bad egg. ha ha Perhaps its a double bluff because it makes me think of someone being eccentric and kind.
  3. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    Action for M.E. (UK) New Medical Advisor

    Action for M.E. (UK) New Medical Advisor

    http://www.forums.aboutmecfs.org/sh...ion-for-M.E.-(UK)-New-Medical-Advisor&p=78427

    Dr Alastair Miller is to take over from Prof Tony Pinching as Medical Advisor to Action for M.E.

    Thread above is to be merged with duplicating thread:

    http://www.forums.aboutmecfs.org/sh...l-Adviser-Dr-Miller-(who-promotes-CBT-and-GET

    see also: Older thread:

    http://www.forums.aboutmecfs.org/sh...ctice-Liverpool-CF-CFS-Clinic-Patient-handout
  4. Dx Revision Watch

    Dx Revision Watch dxrevisionwatch.com

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    Liverpool CFS Service leaflet

    Liverpool CFS Service leaflet

    Orla writes:

    http://www.forums.aboutmecfs.org/sh...-Patient-handout&p=78468&viewfull=1#post78468

    See Post #112 for the image of the handout text


    In the other Alistair Miller thread, Orla writes:

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