1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Nitric oxide and its possible implication in ME/CFS (Part 1 of 2)
Andrew Gladman explores the current and historic hypotheses relating to nitric oxide problems in ME/CFS. Part 1 of a 2-part series puts nitric oxide under the microscope and explores what it is, what it does and why it is so frequently discussed in the world of ME/CFS. Part 1 focuses...
Discuss the article on the Forums.

UK Doctor for heavy metals & gut damage?

Discussion in 'ME/CFS Doctors' started by Bee, Jun 7, 2014.

  1. Bee

    Bee

    Messages:
    10
    Likes:
    2
    London, UK
    Hi everyone,

    I'm new to the forum, and I want to say that it's wonderful to see how everyone supports each other, both with medical knowledge and encouragement.

    I need to ask your recommendation for a doctor near London, UK. Especially after suffering terrifying neurological symptoms, I'm really desperate for the right doctor. To summarize my story and respect your time: From my existing tests, I know that my problem is heavy metal toxicity and severe gut damage. The heavy metals are iron & copper (due to problems with the Ceruloplasmin gene). The gut damage showed up as an extremely leaky gut in a urine test, and I also have a candida infection. I may have parasites -- haven't been tested for those yet.

    So I need a doctor who is experienced in gut repair, and also in treating heavy metal toxicity. It's critical to me to find a doctor who can treat this appropriately (and who can work with the inter-dependence between heavy metals and leaky gut). I'm happy to travel 1-2 hours outside of London for the doctor.

    I will be VERY grateful for any doctors you can recommend. Thank you very much!!
     
  2. minkeygirl

    minkeygirl Narcissism = lack of self awareness

    Messages:
    2,277
    Likes:
    1,472
    Left Coast
    @maryb might be able to help you.
     
  3. brenda

    brenda Senior Member

    Messages:
    1,301
    Likes:
    656
    UK
    Bee

    There is no doctor at present who is recommended apart from a mixed bag about Dr Myhill who is taking no new patients atm. I myself go to Breakspear on the NHS but have not had much success apart from useful tests.

    There are some who are travelling to see Dr KDM in Belgium and that is where I would go if I had the choice. The most help is from testing. Doctors are just experimenting on us.
     
  4. maryb

    maryb iherb code TAK122

    Messages:
    2,876
    Likes:
    2,010
    UK
    Sorry I don't know any other than Dr Myhill, B/spear and KdM. B/spear are also limited now in what they can offer as they were hauled over the coals for treating patients with IV chelation drugs, they had to stop and now only offer nutritional and oral support.
    There is a clinic in Ireland that offers IV chelation, can't remember the name but it came up a while ago when I was googling IV chelation.
     
  5. minkeygirl

    minkeygirl Narcissism = lack of self awareness

    Messages:
    2,277
    Likes:
    1,472
    Left Coast
    @maryb when I did my chelation, I was not able to tolerate the DMPS IV so I would go to the docs for an injection and then I would take DMPS orally until my next appointment.
     
  6. Bee

    Bee

    Messages:
    10
    Likes:
    2
    London, UK
    @minkeygirl, @maryb, @brenda, thank you all for your replies!

    I was hoping that someone may have had a good experience with chelation / gut repair, but clearly the doctors leave much to be desired... As a result we are all having to be our own doctor. There really should be better medical options! I understand that it's especially hard to find effective treatment for heavy metal toxicity.

    On the gut side -- has anyone at least had good medical help for Candida & Leaky gut (in the UK)?
     
  7. ukxmrv

    ukxmrv Senior Member

    Messages:
    3,504
    Likes:
    2,037
    London
    Not since Dr Hyams was forced to leave the UK and another doctor was forced to change the way he treated patients. This area was never a major concern for me though. Dr Hyams did tests for me and we discussed possible treatments. UK doctors are at risk of persecution from the GMC.

    One possibility would be to ring the Biolab clinic and see if they have a doctor there who deals with this area

    http://www.biolab.co.uk/

    Good luck.
     
    Bee likes this.
  8. justy

    justy Senior Member

    Messages:
    2,677
    Likes:
    2,880
    U.K
    Bee likes this.
  9. Bee

    Bee

    Messages:
    10
    Likes:
    2
    London, UK
    @ukxmrv, thank you for the suggestion! It's sad to hear about Dr Hyams. Regarding Biolab – I had the same thought, and rang them in February to ask about doctors. That's how I found the doctor that I'd been seeing for the past couple of months, and I'm afraid he was useless – it was a very frustrating experience. That's why I thought, from now on I will only see a doctor by patient recommendation, to avoid another experience like that.

    @justy, thanks a lot for the information! I've seen Dr Forsyth's name before. I'll give him another look now that I know he helped someone else.

    Thanks and best wishes,
    Bee
     
    ukxmrv and justy like this.
  10. Uno

    Uno Senior Member

    Messages:
    106
    Likes:
    27
    Brighton, United Kingdom
    Dr Alan Stewart in Brighton is excellent
     
    Bee likes this.
  11. manna

    manna Senior Member

    Messages:
    368
    Likes:
    257
    Bee likes this.
  12. Bee

    Bee

    Messages:
    10
    Likes:
    2
    London, UK
    Thanks, @Uno and @manna for your replies. Very much appreciated! I will look into those practitioners.
     

See more popular forum discussions.

Share This Page