Invisible Illness Awareness Week 2016: Our Voices Need to Be Heard
Never heard of Invisible Illness Awareness Week? You're not alone. Jody Smith sheds a little light to make it more visible
Discuss the article on the Forums.

UK Dept of Work & Pensions site hype efficacy of GET & CBT based on their PACE Trial

Discussion in 'General ME/CFS News' started by Dolphin, Nov 14, 2011.

  1. Dolphin

    Dolphin Senior Member

    Messages:
    10,639
    Likes:
    28,085
    (Apologies if this page was discussed before)

    My attention was recently drawn to the following page:
    http://www.dwp.gov.uk/publications/...onditions/chronic-fatigue-syndrome/treatment/

    It was updated in April 2011. It uses the language of the PACE Trial to make claims.

    I'm a bit busy at the moment to write too much but I'm sure others can analyse it more.

    The interesting thing of course is that they were one of the funders of the PACE Trial. And the definition of "normal" (among other things) was changed in the published paper compared to the protocol. Could their preferences have influenced the authors? Could the authors have known what their preferences might be? Of course, the preferences of insurance companies might be similar.
     
  2. justinreilly

    justinreilly Senior Member

    Messages:
    2,496
    Likes:
    1,214
    NYC (& RI)
    This is hardcore Wessely-type stuff. I hope people will complain to them.

    Emphasis added
     
  3. Esther12

    Esther12

    Messages:
    8,449
    Likes:
    28,507
    Some of the other pages:

     
  4. Valentijn

    Valentijn WE ARE KINA

    Messages:
    14,281
    Likes:
    45,792
    It's interesting how they acknowledge most of the physical symptoms, but sneak in words and phrases to imply that it's the result of muscle wasting, psychological problems, other diseases, girliness, etc.

    The "management" and other sections posted by Esther sound particularly schizophrenic. As if they wanted to make sure that the literature applies to real ME/CFS, but then rewrote it to include a psychological spin that doesn't fit very well.
     
  5. [​IMG]

    "Department of Dismantling the Welfare State so Rich Scum Can Pay Less Tax To Keep The Excess Population Alive"
    that's what it's REALLY all about.
    Also important to udnerstand how that phrase came about, got used, eventually became a slogan for monstrous evil, and how the an initial good idea (large scale public works to give jobs during the Depression) ended up getting perverted step by step into slave labour to both exterminate the "untermensch" but also, to make vast fortunes for Big Business (most people are unaware of the fact the Third Reich was really put in power, supported and exploited by social Elite and Big Business, historical fact)

    History tends to repeat itself, scumbags learn the lessons and use the ideas of previous scumbags.
    And, things can "go down the rabbit hole" incredibly quickly which is why civil rights and prevention of abuse are so crucial, the abuse of today's "societal scapegoat" eventually becomes the de rigeur process by how the System works

    please see the horrendous way the UK tabloids and some politicians have attacked the disabled and welfare system for several years now, blaming all ills on us, ha! when the country is in a mess because they let their Big Business friends get away with avoiding brobdignagian sums of tax revenue the country desperately needed
    loved recent scandal when several senior figures in government and tax inspectorate were caught out, having expensive dinners etc with the big mobile phone and banks invovled in the recent financial mayhem and then thsoe same businesses got let off with tax...

    http://www.bbc.co.uk/news/business-15630606
     
    Battery Muncher likes this.
  6. Esther12

    Esther12

    Messages:
    8,449
    Likes:
    28,507
    I love the prognosis section. It says almost nothing, but in the most positive way possible. It's always amusing when people forget to put any content in their sentences.
     
    WillowJ and justinreilly like this.
  7. Dolphin

    Dolphin Senior Member

    Messages:
    10,639
    Likes:
    28,085
    justinreilly likes this.
  8. *GG*

    *GG* Senior Member

    Messages:
    6,111
    Likes:
    4,693
    Concord, NH
    "A recent study (PACE study), however, showed that both Cognitive behaviour therapy (CBT) and Graded exercise therapy (GET) were more effective than APT, that APT was no more effective than specialist medical care alone and recommended that patients attending secondary care with CFS should be offered individual CBT or GET alongside specialist medical care. "

    What does this say about our/thier medical care? No more effective than CBT and GET.

    gg
     
    taniaaust1 likes this.
  9. Dolphin

    Dolphin Senior Member

    Messages:
    10,639
    Likes:
    28,085
    Medical care in this case wasn't very "medical" - not something somebody in the US would travel long distances for (say). Also in case it's not clear, the comparison was CBT+SMC or GET+SMC vs APT+SMC vs SMC-alone.
     
  10. Wonko

    Wonko Senior Member

    Messages:
    1,422
    Likes:
    4,621
    The other side.
    "specialist medical care" for ME in the UK is CBT/GET - by defintition as NICE do not allow any other form of "treatment" and doctors who step out of line are hauled up before the GMC.

    So, "specialist medical care" on it's own i.e.(CBT/GET), is less effective than CBT/GET in combination with "specialist medical care" i.e. CBT/GET?

    Am I just having a bad brain day or is this meaninless doublespeak posing as utter drivel?
     
    justy and justinreilly like this.
  11. Dolphin

    Dolphin Senior Member

    Messages:
    10,639
    Likes:
    28,085
    Specialist Medical Care meant you got a few appointments with a doctor.
     
  12. Sean

    Sean Senior Member

    Messages:
    3,248
    Likes:
    17,948
    Who had nothing to offer you beyond Standard Medical Care.
     
  13. Kafka!
    The banality and sheer bloody-minded, unswerving stupidity of evil should never be underestimated
    Facts and compassion are inconveniences, after all! (to them) ;)
     
  14. Esther12

    Esther12

    Messages:
    8,449
    Likes:
    28,507
    SMC wasn't really CBT/GET. It wasn't like anything I've ever been offered on the NHS either.
     
  15. Dolphin

    Dolphin Senior Member

    Messages:
    10,639
    Likes:
    28,085
    Yes, indeed in the protocol it was called "standardised specialist medical care (SSMC)".
     
  16. Enid

    Enid Senior Member

    Messages:
    3,309
    Likes:
    858
    UK
    UK Dept of W and Pensions must be the last and least informed about science and current research findings. My own assessment came only because of those individuals who came and witnessed the severity of the physical and cognitive - ah and no not you Mr Wessely.
     
  17. Sean

    Sean Senior Member

    Messages:
    3,248
    Likes:
    17,948
    And which, if I recall rightly, was thereafter almost exclusively referred to by the authors as "Specialist Medical Care (SMC)".

    Which is a little on the generous side.
     
  18. Enid

    Enid Senior Member

    Messages:
    3,309
    Likes:
    858
    UK
    Specialist medical care is more than generous in the UK - where is it ?
     
  19. Dolphin

    Dolphin Senior Member

    Messages:
    10,639
    Likes:
    28,085
    (Not sure this is important) The acronym SSMC was in 60 places in the protocol although like you say the "specialist medical care" was commonly used.
    More importantly, standardised was completely dropped from the main (non-protocol) paper which is all 99% of normal professionals will read. In the PACE Trial Identifier, it was called "usual medical care".
     
  20. Sean

    Sean Senior Member

    Messages:
    3,248
    Likes:
    17,948
    I meant that the authors calling it 'specialist' is them being a little generous to themselves with the truth, and trying to make a silk purse out of a sow's ear.

    Certainly not suggesting that genuine specialist medical care for ME patients is generous in the UK, or anywhere else.

    Exactly. Could even be described as a deliberately misleading omission.
     

See more popular forum discussions.

Share This Page