The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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(UK) Cost of Bedfordshire service (CBT/GET) per patient: £3860

Discussion in 'General ME/CFS News' started by Dolphin, Feb 29, 2016.

  1. Dolphin

    Dolphin Senior Member

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    This is a lot more than the cost estimated in the PACE Trial cost effectiveness study.

    http://bit.ly/1QnWMOz
    i.e.
    <http://www.sept.nhs.uk/for-gps/bedfordshire-and-luton/bedfordshire-and-luton-mental-health-services/adults/clinical-health-psychology-services/chronic-fatigue-syndrome-service/>

     
    Last edited: Feb 29, 2016
  2. msf

    msf Senior Member

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    I´m going to write to them to ask if I can just have the money if I promise to damage my health through over exertion whilst listening to psychobabble on my headphones.
     
  3. Esther12

    Esther12 Senior Member

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    Hard to see how they could claim that's cost effective.
     
  4. alex3619

    alex3619 Senior Member

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    If they were frank about these things they would face issues. What competent politician or bureaucrat would approve a treatment they knew cost a lot of money but had no effect? (It is probable there is no long term benefit versus doing nothing.) Especially given that there may be further undocumented long term costs from these treatments.
     
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  5. Sean

    Sean Senior Member

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    £3860 per patient, for diddly squat.

    :mad:
     
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  6. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    Ahemm.........psychobabblers gotta eat.;)
     
  7. Justin30

    Justin30 Senior Member

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    What a joke...i cant believe people...does no one from Canada or Britain see what research is coming the out of the US, P2P, OMI? Or why dont they just read the WHO Definition on MYALGIC ENCEPHLOMYLITIS ....some people should be ashamed about what they do....sad so so sad
     
    Last edited: Feb 29, 2016
  8. Sean

    Sean Senior Member

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    Well they can eat my leftovers. :p

    ;)
     
  9. Valentijn

    Valentijn Senior Member

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    What was the PACE estimate?
     
  10. Justin30

    Justin30 Senior Member

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    Too much lol!
     
  11. alex3619

    alex3619 Senior Member

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    I thought about that, but who is going to pay for the cost of postage?

    I recommend surface mail, its cheaper.
     
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  12. Bob

    Bob

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    I was wondering that too. Will have to dig out the cost analysis paper.
     
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  13. A.B.

    A.B. Senior Member

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    At 2.5 years followup, no differences between groups. Patients in all 4 groups offered additional CBT and GET, but number of CBT / GET sessions doesn't correlate with improvement.

    I would argue that it's a placebo treatment. One could argue that CBT / GET helps some patients improve a little faster (but evidence for this claim is insufficient since it's all based on subjective outcomes prone to bias).

    Conclusion: no way this is cost effective.

    Can we finally admit that the emperor is naked and move on?
     
  14. Sean

    Sean Senior Member

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    One could also point out that the slope of the trends at 2.5 years indicate a distinct possibility that APT and (separately) SMC could outperform both CBT and GET over longer time periods.

    Unfortunately, because the investigators stuffed the randomisation (by offering CBT and/or GET to all trial arms, as an optional additional post-intervention therapy), we can now never determine that.
     
  15. anciendaze

    anciendaze Senior Member

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    This still underestimates the cost to the NHS of conventional medical testing required to avoid serious harm through GET. That was one place where PACE externalized significant costs.
     
  16. alex3619

    alex3619 Senior Member

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    The Emperor and his entourage wont. It takes a small child to start the laughter.
     
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  17. Snow Leopard

    Snow Leopard Hibernating

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  18. Keela Too

    Keela Too Sally Burch

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    I really no longer see how the NICE guidelines have a leg to stand on in recommending GET CBT.
     
  19. worldbackwards

    worldbackwards A unique snowflake

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    NICE recommended CBT long before the results of PACE were out, because that was what they had and what they were being sold by the 'experts'.

    PACE was more of a rubber stamp than anything else. Though a rather dodgy one as it turned out...
     
  20. Keela Too

    Keela Too Sally Burch

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    Yes, I'm aware of that, but once the long term benefits turned out to be null (as a result of such a highly funded study no less) then surely the earlier reasoning collapses?
     

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