New Atmosphere, New Vision: Gibson and Whittemore Kick Off Invest in ME Conference 2016
Mark Berry reports on Dr. Gibson's introduction and Dr. Whittemore's keynote speech, at the 11th Invest in ME International ME Conference in London.
Discuss the article on the Forums.

UK CMRC 2016 conference programme announced

Discussion in 'General ME/CFS News' started by Sasha, May 27, 2016.

  1. Sasha

    Sasha Fine, thank you

    Messages:
    12,783
    Likes:
    34,198
    UK
    Hutan, Invisible Woman, Comet and 7 others like this.
  2. Simon

    Simon

    Messages:
    1,921
    Likes:
    14,541
    Monmouth, UK
    Meat of the programme

    Weds 28 Sep

    Plenary Session 1: Big Data, Biomarkers & Stratification Chair: Prof Hugh Perry, Southampton University

    10.00 Dr David Patrick University of British Columbia
    TBC: to include focus on submaximal exercise testing in ME/CFS and other research areas in relation to the stratification of illnesses through work in public health

    10.45 Dr Zaher Nahl, Solve CFS/ME Initiative
    TBC: to include focus on Solve CFS/ME Initiative’s biobank and other research programmes

    11.30 Prof George Davey Smith, Bristol Uni
    ME/CFS Epidemiology & Genomics Alliance (MEGA) – A big data study

    12.15 Prof Caroline Relton, Bristol
    TBC: to include focus on the potential role of epigenetics in ME/CFS research and MEGA


    13.00 David Ford Swansea University
    TBC: to include focus on SAIL database in Wales and routinely collected data

    13.30 Lunch

    14.45 Workshops

    Workshop 1: Exploring the challenges of gaining ME/CFS funding for the range of science required.
    Prof Paul Littl, Southampton University
    Prof Tom Whalley , NIHR Opal Wesbster-Philips

    Discussion-based with presentations from:
    • Perspectives from a funder
    Perspectives from a person with M.E.

    Workshop 2: Research with people with severe M.E.
    Victoria Strassheim, Newcastle University

    Workshop 3: M.E. & POTS
    Dr Lesley Kavi, POTS UK, and Prof Julia Newto, Newcastle

    16.00 Refreshments Break

    16.30 MRC-funded Research Project Updates

    17.30 Panel Discussion with open Q&A: to include keynote presenters

    18.30 Wine Reception

    19.30 Conference closes for Associate Members

    20.00 Private Dinner for Researchers Only

    =====


    THURSDAY 29 SEPTEMBER 2016 – Open to Researchers/Student Researchers only

    09.00 Sonya Chowdhury, Action for M.E.
    Mapping global research funding over the last 10 years – a Collaborative sponsored report

    09.10 Dr Neha Issar-Brown, MRC

    Enhancing research funding applications into ME/CFS

    10.30 Dr Julius Bourke Queen Mary’s University,London

    Neurophysiology of pain in ME/CFS

    tbc tbc

    12.00 Dr Sarah Knight Murdoch Children’s Research Institute
    Improving quality of care in paediatric chronic fatigue syndrome

    12.30 Dr Esther Crawley, Bristol
    Paediatric CFS/ME

    tbc
    tbc
    close
     
    Last edited: May 27, 2016
    Hutan, Comet, Sasha and 4 others like this.
  3. BurnA

    BurnA Senior Member

    Messages:
    2,086
    Likes:
    9,861
    Maybe they could just cancel the Thursday ?
     
    JaimeS, Hutan, Mrs Sowester and 4 others like this.
  4. Esther12

    Esther12 Senior Member

    Messages:
    8,449
    Likes:
    28,522
    Surely just a co-incidence that they put people like Crawley and Bourke on the day patients cant attend!
     
    JaimeS, Hutan, mango and 5 others like this.
  5. Comet

    Comet I'm Not Imaginary

    Messages:
    674
    Likes:
    3,616
    :rofl:
     
    BurnA likes this.
  6. akrasia

    akrasia Senior Member

    Messages:
    213
    Likes:
    464
    Very interesting, especially in light of the fact that Solve CFS/ME Initiative has taken a very strong position advocating that the AHRQ take a hard look at David Tuller's arguments:



    http://solvecfs.org/Solve ME/CFS Initiative Calls for Review of PACE Trial

    Assuming that the CMRC is aware of this statement and can still include SMI in the program suggests that skepticism about PACE is beginning its march to legitimacy in the UK.
     
  7. Esther12

    Esther12 Senior Member

    Messages:
    8,449
    Likes:
    28,522
    Wonder who that is? Someone who is going to rip apart the history of crap CFS research funded in the UK?
     
    Last edited: May 27, 2016
    JaimeS, Dolphin, Comet and 3 others like this.
  8. Hutan

    Hutan Senior Member

    Messages:
    1,069
    Likes:
    6,427
    New Zealand
    Dr Sarah Knight is the lead on the study my son and I have been participating in. I've talked about this study elsewhere. It's the one titled 'Understanding CFS' that has no questions about anything to do with PEM but a whole load of questions about neuroticism, avoidance and poor sleep hygiene on the part of the child and facilitation of illness behaviour on the part of the parent.

    Questions like 'do you repeat words or numbers over and over in order to stop bad things happening?'; 'do you chew or smoke tobacco within the hour before bedtime?'; 'do you give your child treats when they are ill?'.

    Do we get to hear/read what was said on the Thursday at some later time?
     
    MEMum, JaimeS, Valentijn and 4 others like this.
  9. Comet

    Comet I'm Not Imaginary

    Messages:
    674
    Likes:
    3,616
    :wide-eyed: :jaw-drop: :meh:
     
    MEMum, JaimeS and Hutan like this.

See more popular forum discussions.

Share This Page