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UK Charity Launches Major Study Into CFS/ME and Pain

Discussion in 'General ME/CFS News' started by Firestormm, Mar 3, 2013.

  1. Firestormm

    Firestormm Senior Member

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    Cornwall England
    Don't hear very much from this charity:

    Marco, golden, Simon and 1 other person like this.
  2. Ember

    Ember Senior Member

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    ProHealth.com * March 2, 2013

    http://www.prohealth.com/library/showarticle.cfm?libid=17898
    The study will cost over two hundred and thirty thousand pounds.

    ~Source: The CFS Research Foundation
  3. SpecialK82

    SpecialK82 Senior Member

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    Really glad to see this in the UK - terrific!
  4. golden

    golden Senior Member

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    Clear Light
  5. pamb

    pamb Senior Member

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    Edmonton, AB, Canada
  6. Battery Muncher

    Battery Muncher Senior Member

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    This sounds very good!

    I'd still like to see more research into Rituximab... but all serious research is welcome (god knows we don't get enough) so very excited to hear about this!
  7. Shell

    Shell Senior Member

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    This is an interesting follow on from the research into how people with FMS process pain. High Res Spect scans showed that people with FMS have bizarre patterns for pain showing...well... that it bloomin' hurts.
    I remember the Science Mag thingy reporting on it with a sort of shock "People with FMS really are in pain!" The undertone of 'patients aren't lying fancy that' was irritating, but the images were amazing.
    It's what started Patrick Woods down the road of seeing if fibro is really a flavour of hyper POTS - which he seems to have shown it is, as far as I can tell.
    So could ME/cfs pain be HPA axis related too I wonder?
    I'll wait and see.
    Valentijn likes this.
  8. maryb

    maryb iherb code TAK122

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    okay so I'm probably an old sour guts - pain is an important aspect of the illness but its not where I would start, I'm sure many would disagree but thats okay too.............
    jimells and Shell like this.
  9. Guido den Broeder

    Guido den Broeder *****

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    I haven't seen any evidence that the brain handles pain signals differently in ME, nor do I think there is a reason to expect this.
  10. lansbergen

    lansbergen Senior Member

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    It is not what the psychs claim but I am pretty sure it does because of acetylcholine system disturbance.

    I need to dubble stimulate the a7nAchR with nicotine and levamisole to decrease painlevels.
  11. Guido den Broeder

    Guido den Broeder *****

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    Acetylcholine decreases pain perception somewhat, but that is the case in people without ME as well. It does not follow that the perception was originally too strong.
  12. lansbergen

    lansbergen Senior Member

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    For me perception is waarneming/gewaarwording. Do you agree with that?
  13. lansbergen

    lansbergen Senior Member

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    Healthy people do not need to stimulate the receptor.
  14. lansbergen

    lansbergen Senior Member

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    When the acetylcholine system is disturbed the brain has to handle it different.

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