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UK CFS PATIENTS HAVE YOU HEARD OF SUCH A THING IN THE NHS????

trishrhymes

trishrhymes

Senior Member
Messages
2,158
TedBakerBoy said:
F**K!!!! Pardon my French but i was expecting some sort of Star Trek Scientific testing but instead i'll be getting treated like a looney tune by the sounds of things!!
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Let's all hope you get your Star Trek Scientific testing. We could all be wrong...
Do let us know.

If you're feeling brave, perhaps you could take along a copy of Jonathan Edwards' comment, and tell them you are expecting scientific testing...

Good luck.
 
slysaint

slysaint

Senior Member
Messages
2,125
trishrhymes said:
Star Trek
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1227830.main_image.jpg
 
TedBakerBoy

TedBakerBoy

Messages
93
Location
Glasgow (UK)
Oh and questioned my GP on low dose pred her response was "it's no worse than drinking 4 pints of lager on a weekend" this was the same doc who told me to eat rice crispies for my low folic acid WTF :))!!
 
CFS_for_19_years

CFS_for_19_years

Hoarder of biscuits
Messages
2,396
Location
USA
TedBakerBoy said:
I've been going back and fourth to my GP recently in the U.K with no further improvement nor diagnoses. She's referred me to an unexplained medical team on the NHS, I have never heard of such a thing before, has anyone ever heard of anything like this on the NHS.?
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I wonder if there's any chance they will run a battery of blood tests at the start of your referral to the "unexplained medical" team. Have you had any blood tests run recently? I think you might have mentioned a CBC a while back, but you should also have had a Basic Metabolic Panel, thyroid tests, B12, folic acid, CRP, ESR and a basic urinalysis. Does any of this sound familiar? If your regular GP is leaving this up to the team she's referred you to, it might be good to have these tests done. Once you've had them done and the results have been evaluated, then you can decide if you want to stay on for any further services from the unexplained medical team.

If there's a packet of information they give you at the beginning of your time with them, you could see if they mention anything like this.
 
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