Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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UK academics view ME differently to US says NICE spokesman

Discussion in 'General ME/CFS News' started by Countrygirl, Oct 25, 2016.

  1. Countrygirl

    Countrygirl Senior Member

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    http://www.meassociation.org.uk/201...eedom-of-information-request-24-october-2016/

    NICE takes a dim view of foreign work on ME/CFS | Robin Ellis Freedom of Information request | 24 October 2016

    Why we are still in the dark ages in the UK.

    This article is posted on the MEA site.


     
    MeSci, Jo Best, justy and 19 others like this.
  2. Sidereal

    Sidereal Senior Member

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    Typical British medical profession insularity.
     
    Snow Leopard, justy, Wildcat and 5 others like this.
  3. Hilary

    Hilary Senior Member

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    Following the debacle of the PACE trial, can Prof Baker explain exactly why they would take seriously the views of the "esteemed" Royal College of Psychiatrists?? He seems to have his head stuck firmly in the sand.
     
    justy, Wildcat, ghosalb and 11 others like this.
  4. msf

    msf Senior Member

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    That is because they are insular, stuck-up morons.
     
    Wildcat, ghosalb, barbc56 and 4 others like this.
  5. msf

    msf Senior Member

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    I see someone used ´insular´ already. How about jingoistic then?
     
    ghosalb likes this.
  6. Yogi

    Yogi Senior Member

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    Here is the "insular" and "jingoistic" Mark Baker profile:

    He is completely irresponsible for ignoring the dangers and harms of GET and the scandal of PACE. The charities need to put pressure on him as he is responsible for actual and potential harm of GET for thousands of people.

    Surely he would be in breach of GMC guidelines in what he has done as doctors are responsible for preventing harm for patients and he is putting his head in the sand when he as NICE guidelines director is ultimately responsible?

    Other doctors simply defer to NICE when they say GET is safe and therefore we have circular logic and no-one taking responsiblity!!




    [​IMG]

    Mark is the Director of the Centre for Guideline (CfG) and is responsible for designing and operating methods and systems to produce clinical guidelines for the NHS. CfG is also responsible for the work of the Medicines and Prescribing Centre including summaries of evidence on new medicines and unlicensed and off-label medicines and the management of the contract for the British National Formulary.

    Before joining NICE, Mark was Lead Cancer Clinician at the Leeds Teaching Hospitals and National Clinical Lead for Cancer Peer Review. He has previously worked in transplantation, academic medicine and public health medicine and was Chief Executive of Bradford Teaching Hospitals for six years and a Director of Research and Development.

    https://www.nice.org.uk/about/who-we-are/senior-management-team
     
    barbc56 likes this.
  7. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    "What do these bloody Colonials know, eh?
    Did they go to world renowned GoatBuggery And Old Peculiar College?
    Are they the result of ten centuries of inbreeding?
    Are they related to everyone on every oversight committee in the country?
    No of COURSE not!
    They know nothing!"


    *he says in posh accent, like some chinless wonder* :p

    They know nothing...
    Funny thing is, the REAL John Snow, that is DOCTOR John Snow, the guy who linked cholera to the a well in London in the early 1800s, he was attacked and vilified by the medical Establishment for his presumption and "ridiculous claims" because he spoke against the "convectional wisdom" of the wilfully ignorant jackasses who still thought bleeding was the high art of medical "science",
    and THAT fact is glossed over when they gush over his break through
     
    Barry53, TiredSam, actup and 8 others like this.
  8. NL93

    NL93 Senior Member

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    Oh gosh.

    Is the Norwegian Rituximab trial not a major study on treatment?
     
  9. Hilary

    Hilary Senior Member

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    It just seems so arrogant to ignore what is happening in the rest of the world and beyond foolish (contrary to the Hippocratic oath??) to ignore the evidence of the harm that has been caused through use of GET.
     
    Angel27, justy, actup and 12 others like this.
  10. Hilary

    Hilary Senior Member

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    And what a depressing contrast to the statement by Chris Ponting I've just read - that "we -as scientists - need to be humble". And listen to the patients?
     
    actup, Wildcat, barbc56 and 4 others like this.
  11. BurnA

    BurnA Senior Member

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    Thanks I didnt know that - fascinating !

     
  12. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

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    How can they be allowed to consistently be so harrowingly incompetent
     
    Daisymay, barbc56, Sean and 1 other person like this.
  13. Deepwater

    Deepwater Senior Member

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    Ashamed - and scared - to be English growing old in this country with this disease.
    One could be forgiven for suspecting that ME denial is still a matter of fixed government/ Establishment policy rather than simply silly-buggery. Prevent funding for proper biomedical research (and if pressed pretend to fund a bit but make sure it's rubbish) and refuse to accept the results of any research conducted overseas. It's a watertight recipe for continuing to support the hysteria myth for ever. Accidental? pull the other leg, please.
     
    justy, Wildcat, Daisymay and 2 others like this.
  14. IreneF

    IreneF Senior Member

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    San Francisco
    barbc56 and Sean like this.
  15. Woolie

    Woolie Senior Member

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    Vive la Grande Bretagne! I recommend that this policy - of prioritising UK expertise over that of foreigners - be immediately accepted in all domains.

    Policy to have immediate effect in the areas of wine-making, food sales and restaurants, central heating, the car manufacturing industry, customer service practices, and of course plumbing (particularly shower attachments).
     
  16. Sean

    Sean Senior Member

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    o_O
     
    moosie, Sidereal, Daisymay and 2 others like this.
  17. Countrygirl

    Countrygirl Senior Member

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    No, of course not,@NL93 , obviously not..........because, well, Norway is..........foreign........it is not in England.
     
    justy, actup, Wildcat and 6 others like this.
  18. barbc56

    barbc56 Senior Member

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    Researchers Within Borders?

    Such arrogance! :bang-head:
     
    Daisymay likes this.
  19. worldbackwards

    worldbackwards A unique snowflake

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    Earth
    Brexit Britain. :)
     
    loops, justy, Valentijn and 2 others like this.
  20. Forbin

    Forbin Senior Member

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    It's interesting that you mention John Snow, because I just realized that Dr. Ian Lipkin is the John Snow Professor of Epidemiology at Columbia University's Mailman School of Public Health.

    I figure it's got to be the same John Snow, since (as I learned following up on @SilverbladeTE's post) he is considered a "father of epidemiology," due to his work on the London cholera epidemics of the 1850's.

    It feels appropriate that Lipkin holds a chair named for someone who fought against the entrenched view.
     
    Last edited: Oct 26, 2016
    SilverbladeTE, justy, actup and 7 others like this.

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