The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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Twisk: ME, CFS or SEID: What’s in a name?

Discussion in 'Latest ME/CFS Research' started by mango, Jul 30, 2016.

  1. mango

    mango Senior Member

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    Myalgic Encephalomyelitis, chronic fatigue syndrome or systemic exercise intolerance disease: What’s in a name?

    Frank N.M. Twisk, MBA MBI BEd BEc
    ME-de-patiënten Foundation, Zonnedauw 15, 1906 HB Limmen, The Netherland

    Asian Journal of Psychiatry October 2016 Volume 23, Page 70
    DOI: http://dx.doi.org/10.1016/j.ajp.2016.07.004
    Published Online: July 21, 2016. Received: July 3, 2016

    With interest I have taken notice of a contribution by Sen and colleagues (Sen et al., 2016). According to the Sen et al. (2016) replacing Chronic Fatigue Syndrome (CFS) (Fukuda et al., 1994), a “mental disorder” which is “characterized primarily by the symptom of severe, persistent and disabling fatigue” and “included in the DSM-IV-TR within the rubric of undifferentiated somatoform disorder”, by Systemic Exercise Intolerance Disease (SEID) (Institute of Medicine, 2015), a “more ‘biological’ disease”, implicates “a need to debate the failure of the bio-psycho-social model to ‘mainstream’ and destigmatize psychiatry”.

    http://www.asianjournalofpsychiatry.com/article/S1876-2018(16)30289-1/abstract
     
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  2. mango

    mango Senior Member

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    Bob likes this.
  3. A.B.

    A.B. Senior Member

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    The BPS model of CFS is the source of stigma.

    The ideas surrounding it are essentially hateful prejudice rephrased to sound more sciencey and less offensive.

    Deconditioned = lazy
    False illness beliefs = hysterical
    Boom and bust behaviour = patients can't manage their own lives, need a therapist
    Fear avoidance behaviour = patients let their fears control them
     
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  4. JaimeS

    JaimeS Senior Member

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    Mid-Ohio Valley, United States
    Fear avoidance behavior = patients are terrified of motion

    Translation: people with really poor scores in biology saw that heart rate jumped when patients with ME, many of whom also have OI, stand, and drew the most logical conclusion possible:

    Patients are clearly terrified of standing up.

    I would say this is total and complete nonsense but it's what my first GP said when I told him that my heart pounded terribly when I first stood up in the morning: that I must be anxious about starting my day. :confused:
     
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