Tuller / Undark: CDC Removes Reference to Disputed ME/CFS Therapies From Website

[Cheshire]

CDC Removes Reference to Disputed ME/CFS Therapies From Website
The agency has long recommended two controversial treatments for chronic fatigue syndrome. Earlier this month, it quietly made some changes.

For years, the U.S. Centers for Disease Control and Prevention recommended two controversial treatments for ME/CFS, the illness often known as chronic fatigue syndrome: a program of steadily increasing activity, and a specific form of cognitive behavior therapy. In early July, the agency removed information about the two treatments from the main section about the illness on its website — a move hailed by patients and advocates who had long fought for the change.

“It’s really, really significant,” said Mary Dimmock, a former pharmaceutical scientist and business analyst who turned to advocacy after her son became severely ill. The CDC’s recommendations influence medical treatment not only in the U.S. but around the world, noted Dimmock.

https://undark.org/2017/07/26/cdc-chronic-fatigue-graded-exercise/

 

[slysaint]

also posted by @AndyPR http://forums.phoenixrising.me/inde...pdated-30th-may-2017.52703/page-4#post-879604

 

[Esther12]

Nice one. Great to get more coverage in Undark.

 

[Sancar]

Wikipedia!?! ~ Anyone tried an attempt to correct thier misrepresentation of our illness. Let's face it millions go to that website as a 'go to' for answers. GET and all the the other damaging rhetoric is stated there just as is was on the CDC's website. I don't know how to address it. Perhaps @Mary could send them a letter written in the manner which she sent to Mayo Clinic. Wikipedia needs to be corrected!