Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Trochanteric Bursitis caused by Lyme?

Discussion in 'Lyme Disease and Co-Infections' started by fireflymd, Oct 29, 2017.

  1. fireflymd

    fireflymd Senior Member

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    Anyone else have trochanteric bursitis due to Lyme?

    I developed pain in my outer thighs several years ago (This pain feels the worst where you can palpate the bony prominence at the top of the thigh bone in the outer thigh, and can make it difficult to walk.)

    Completely misdiagnosed as hip arthritis by a Physical Medicine specialist; then I was told it was due to my being 35 lbs overweight by a Pain Managment specialist (despite the fact that it started when I was slender and kickboxing regularly—it caused me to stop kickboxing) and was coincident with the onset of worsening fatigue.

    Steroid injection in one thigh by Orthopedist provided temporary relief; Platelet-Rich Plasma (PRP) injections provided minimal relief—still felt sore and couldn’t sleep on my sides.

    I have noted, however, that since starting antibiotics for Lyme, I don’t seem to have this pain anymore.

    Anyone else with a similar history?
     
  2. ChrisD

    ChrisD Senior Member

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    East Sussex
    This was probably the first symptom I had of my illness, prior to ME-initiating Virus. In the first two years of something changing, as if the metabolic switch had been flicked and I developed Chronic insomnia, which is what I put my hip pain down to. Since I wasn't sleeping well and not getting good muscle recovery, I presumed that this excruciating burning hip pain in was due to that. But now that you mention Lyme (which I am still trying to get tested for - hunting down a Lyme doctor of some kind in the UK) it could make more sense, since I also had Stretch mark rashes appear all over my hips at the time, despite having no fluctuation in weight - I now know that these rashes are typical of Bartonella so i am joining the dots together here.

    After the initiating infection/flu I experience Reactive Arthritis, Costochondritis and migratory joint pain once the Arthritis subsided, this was followed by Fibromyalgia which has died down and now I have plain ME.

    My Hip pain subsided along with the fibromyalgia as I treated myself with various vitamins/herbs, and detox protocols, maybe I unknowingly treated some of a Lyme infection?!

    My Hips are stronger now but still remain of the weakest muscles in my body and constantly crack and constrict in strange ways....
     
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  3. Gondwanaland

    Gondwanaland Senior Member

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    I got it on the right side (+ right shoulder) from consuming dairy and my feeling is that "acidifying" foods, esp. high in Glutamic Acid (e.g. soy, wheat, cold cuts), worsen it. Things that helped were (moderate doses of) sodium bicarbonate orally, anti-inflammatories like Milk Thistle Extract, Green Tea, Folate to prevent excess uric acid formation.

    Many abx are MMP9 inhibitors and act as anti-inflammatories.
     

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