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#TRIPLETUESDAYOMF -TRIPLE YOUR IMPACT FOR A CURE!!!

Discussion in 'Latest ME/CFS Research' started by Ben H, Oct 17, 2017.

  1. Ben H

    Ben H OMF Correspondent

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    [​IMG]




    [​IMG]

    IS


    [​IMG]

    [​IMG]

    Today we are excited to launch Triple Giving Tuesday OMFwhich will run from today, Tuesday, October 17 through Tuesday, November 28.

    [​IMG]

    Wonderful, caring, and compassionate OMF supporters, Jack and Dilla Cosgrove and family, have graciously pledged a $100,000 matching gift to encourage world-wide support of Triple Giving Tuesday OMF. (Photo: Jack Cosgrove, Jill von Ebers, Chris Quinn and Linda Tannenbaum)

    Chris shares with you why the entire Cosgrove Family has come together to support OMF. "10 years ago, in Baltimore, at my first ME/CFS conference, I struck a conversation with the person sitting next to me. She had a nice smile. Linda's daughter was sick. My wife was sick. We left the conference with no answers but we had found each other."

    "Today Linda is helping OMF drive research that will find the cause and cure for ME/CFS. My family supports my wife Tracey every day doing our best to help her live a meaningful life despite this thing that has us in its grip. For the next 6 weeks, my family is your family. Together we raise hope and will win back our loved ones lives."

    DONATE NOW: For every $1 you donate, the Cosgrove Family will triple your donation - - making "Giving Tuesday" our
    Triple Giving Tuesday
    #TripleTuesdayOMF!


    With the generous matching grant your donations will be tripled and with $50,000 of your donations we will be able to raise $150,000.
    Let's do it!

    We invite you to join OMF to make this an amazingly successful fundraising, friendraising, and awareness campaign. Here is how you can get involved:

    Make a donation of any amount. Every dollar donated will be tripled by the Cosgrove Family.
    1. Make a personal fundraising page and invite your family and friends to donate NOW to TRIPLE their donation.
    2. Host a fundraising event. Invite your family, friends, colleagues, and community to learn about ME/CFSand give them the opportunity to join you by donating to OMF for #TripleTuesdayOMF.
    3. Promote finding a cure by taking the message viral. Share OMF's hashtags and encourage others to support our revolutionary research on Facebook, Twitter and Instagram.
    #TripleTuesdayOMF #GivingTuesdayOMF
    #EndMECFS

    5. Be creative and have fun!!!!
    We invite you to be part of this global effort and provide hope to ME/CFS patients no matter where you live.
    In advance, thank you for your support of research to find a cure.
    JOIN US - GET INVOLVED TODAY!
    With hope for all,
    [​IMG]
    Linda Tannenbaum
    CEO/President
    www.omf.ngo


    An incredible opportunity once again!!!

    Every donation gets tripled from NOW until November 28th!!!

    Lets raise some serious funds for OMF and Prof. Davis's research :)

    Thanks so much,


    Ben

    @Janet Dafoe (Rose49) @AshleyHalcyoneH
    @marilynbsg
     
    Last edited: Oct 17, 2017
    Laurie P, justy, Tuha and 18 others like this.
  2. Nickster

    Nickster Senior Member

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    I just donated. This is great to see my money/donation is worth triple!

    I so appreciated the Stanford Symposium that your team put on and hope for continued success!

    I hope that Dr Ron Davis and his team can find a cure for this awful disease!
     
    justy, Cohen2, CJB and 7 others like this.
  3. Ben H

    Ben H OMF Correspondent

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    Thanks so much @Nickster . Very much appreciated! They are working night and day on it!


    B
     
    justy, CJB, Comet and 5 others like this.
  4. Jesse2233

    Jesse2233 Senior Member

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    This is great, thanks Ben!!

    Edit: donate now link isn't working
     
    Last edited: Oct 17, 2017
    CJB, Ben H and Joh like this.
  5. Ben H

    Ben H OMF Correspondent

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    Thanks @Jesse2233

    The top one is but I have removed the lower donate link as that isn't working. Will try and get the other one back and fixed-thanks!


    B
     
    Last edited: Oct 17, 2017
    justy, CJB and Jesse2233 like this.
  6. Sad Dad

    Sad Dad

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    I'd appreciate it if someone from OMF could get in touch me. I looked at the financial statements and have some questions.
     
    Luther Blissett likes this.
  7. Ben H

    Ben H OMF Correspondent

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    Hi @Sad Dad ,

    Please contact marilyn@omf.ngo and Im sure she would be happy to answer any questions.

    That also goes for anyone who has any questions regarding OMF :)


    B
     
    Last edited: Oct 18, 2017
    justy and Joh like this.
  8. NelliePledge

    NelliePledge plodder

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    Hope you don't think I'm being pedantic but this bit of the forum is for research papers and discussions
    Maybe move the thread to ME events or another area? Might get missed here
     
  9. Ben H

    Ben H OMF Correspondent

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    Hi @NelliePledge

    I posted it here as some updates may reference some of the research being undertaken/where funding will go towards. Perhaps it should be in news, but I posted it here last year I believe with no complaints/problems. If a moderator sees this, please move it to the 'news' section of 'news and research'. Thanks.


    B
     
    nandixon likes this.
  10. Ben H

    Ben H OMF Correspondent

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    Hi guys,

    So as of yesterday we are at $44,931 (including the tripling!)

    IMG_2347.PNG

    Which is fantastic! Please keep telling your friends and family and all those interested :)

    Thanks,


    B
     
    Gingergrrl, Jesse2233, Joh and 8 others like this.
  11. Alvin2

    Alvin2 If humans were rational...

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    Its likely members are tapped out, would a crowdfunding initiative reach more people, perhaps tied to Unrest if Jen is interested?
     
    NelliePledge likes this.
  12. Ben H

    Ben H OMF Correspondent

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    Hi @Alvin2

    I am aware of this (being first and foremost a patient/member myself) but I feel it is important to keep the forum updated regardless of whether people can donate etc.

    As for Unrest, I believe OMF are indeed working with Jen already, though I am unsure of the exact capacity. Any ideas feel free to email marilyn@omf.ngo.

    Thanks,


    B
     
    Gingergrrl and Jesse2233 like this.
  13. Alvin2

    Alvin2 If humans were rational...

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    For sure, all of us hope Dr Davis figures this out (and soon), i'm just saying most of us are low income and precarious, so we can't give as much as we would like to, but there are many out there who could and have higher means then most of us if they can be reached. If you can tell her about the idea that would be great, i'm barely holding on, i can't deal with people professionally right now, i blew myself out yesterday going to the neurologist and i need a few weeks to recover before i can think straight
     
    Ben H likes this.
  14. Ben H

    Ben H OMF Correspondent

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    For sure I will pass it on. OMF do work on this, and have raised large donations from single donors, some anonymous, before. It's something that is being continually worked on.

    Look after yourself and I hope you get back to
    (or above!) baseline soon.


    B
     
  15. Ben H

    Ben H OMF Correspondent

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    Quick update:

    IMG_2349.PNG

    Wow!


    B
     
  16. Jesse2233

    Jesse2233 Senior Member

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    Thanks Ben!

    Think about all the drugs that can be tested using on the assay using those funds!
     
    Squeezer, Binkie4, ivorin and 3 others like this.
  17. msf

    msf Senior Member

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  18. Ben H

    Ben H OMF Correspondent

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    @msf

    I'm not sure why you felt the need to use a loaded word like 'commiserate' but a couple of points:

    1.) It was not OMF who didn't get the funding, it was Stanford/ SGTC

    2.) OMF in conjunction with Stanford has taken unprecedented steps to sharing data with specific functionality built into the website that allows viewing of data from all of OMF/Stanford studies-I believe-for any researcher: http://endmecfs.stanford.edu/index.php

    So OMF have already taken steps for this in the aims of curing the disease faster. I read the statement from NCBVR and unless I am mistaken it was a generalised point, and did not mention OMF specifically. I can't see any reason why the researchers there could not have access to the data as and when it comes available-thus rendering their request granted!

    (And I agree-the more sharing, the better).

    EDIT: I have just found out that Dr DeMeirleir (of NCBVR) and Prof. Davis have met several times and Dr DeMeirleir has presented his ideas to Prof. Davis's team.


    B
     
    Last edited: Oct 21, 2017
    nandixon, CJB, Squeezer and 4 others like this.
  19. msf

    msf Senior Member

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    Because I like to use descriptive language? Thanks for the answer and the clarification anyway - a lot of people on this forum seem to have been under the same impression, that the OMF had their own request rejected.
     
  20. jstash

    jstash Senior Member

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    Unfortunately this won't let me donate via PayPal despite it being offered as an option - just asks me to fill in card details as if I'm using a credit card.
     

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