Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Tribunal orders QMUL to release anonymised PACE data 16 Aug 2016

Discussion in 'General ME/CFS News' started by Sasha, Aug 16, 2016.

  1. Wolfiness

    Wolfiness Activity Level 0

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    Sorry Tom, does the 59% and 61% refer to the amount of improvement in the individual conditions of the people who did improve?
     
  2. BruceInOz

    BruceInOz Senior Member

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    No, it is the number of people who met their criteria for improvement. The criteria was much laxer in the 2011 Lancet article than the protocol.
     
  3. Wolfiness

    Wolfiness Activity Level 0

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    I've never seen this article… PACE 2011 reported 22% each for CBT and GET, no?
     
  4. worldbackwards

    worldbackwards A unique snowflake

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    TiredSam, actup, Kati and 5 others like this.
  5. Kalliope

    Kalliope Senior Member

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    Retraction Watch interviews two Swedish journalists who made a documentary on the Macchiarini-scandal and by that cracked open the case. Wouldn't it be great if the journalists had a similar go at PACE?

    EDIT: For those who have the press release, here's the e-mail address to one of them: bo.lindquist "at" svt.se
     
    Last edited: Sep 12, 2016
    flybro, TiredSam, moosie and 8 others like this.
  6. user9876

    user9876 Senior Member

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    The lancet paper was the original 2011 paper which reported on new primary outcomes. The original outcome values have just been released.

    One of the original primary outcomes was their definition of improved which they never published. They did an alternative secondary analysis which included improved but using much weaker criteria (I think changing 1 or 2 question answers counted as improved). So these new figures give an idea of the exaggeration in the lancet process.

    The 22% comes from a later recovery paper published in psychological medicine. Where they claim that GET, CBT cure 22% of patents
     
    MeSci, Esther12, actup and 2 others like this.
  7. BurnA

    BurnA Senior Member

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    Why not contact them - do you know their names ?
     
    Jan, moosie, Webdog and 2 others like this.
  8. Cheshire

    Cheshire Senior Member

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    Calling people that want sound science "terrorists" seems to be a trend among psychiatrists:

    OMG, she should have been invited to testify in the PACE trial court.

    When psychology/psychiatry decided to break from psychoanalysis' fanciful and baseless theories and enter the field of "scientific psychology", they just adopted apparent scientic process, like a child playing doctor. And real scientists didn't look that much. These psychiatrists/psychologists have been able to go on for years with this pseudo-science, truly believing they were scientists. And they can't even start to understand that what they're doing is pure rubbish.

    http://www.businessinsider.com.au/s...rce=twitter.com&utm_campaign=buffer?r=US&IR=T
     
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  9. A.B.

    A.B. Senior Member

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    I am sure it hurts careers of fraudsters.

    I am sure it undermines pseudoscience.

    I am getting the impression some people who think of themselves as researchers have been chasing positive results through any means possible and have ended up in pseudoscience territory without even realising.
     
    Wonko, sue la-la, Webdog and 11 others like this.
  10. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

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    Machiarrini is basically a murderer. 6 out of the 7 patients who received the plastic trachea died within one year. He CONTINUED giving the plastic tracheas even when he knew they all collapsed due to tissue pressure. Knowing they all developed fatal infections. He even wanted to push more "research" when they all were dead! The only survivor incidentally managed to remove the trachea, or he would be dead as well. In his publications he made it look like there was no side effects when they actually were fatal. The fact that Lancet protects Karolinska and Machiarrini in blatant murder is deeply disturbing and sickening. It`s also messed up that this is not a case of criminal law

    In many ways this is similar to PACE, but here the patients die. Lancet don`t give a ****, that should be a documentary on it`s own. They hide in the background causing much damage all over the world
     
    Wonko, MeSci, Solstice and 7 others like this.
  11. Sean

    Sean Senior Member

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    Wakefield, Machiarrini, and PACE.

    And the common factor is...?

    Richard Horton, chief editor of the Lancet.
     
    JohntheJack, Marky90, ukxmrv and 2 others like this.
  12. slysaint

    slysaint Senior Member

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    About The Lancet medical journal
    The Lancet is committed to applying scientific knowledge to improve health and advance human progress and this is as true today as it was when the first issue was published on October 5 1823.
    With a voice for all people
    When you publish with The Lancet you’re joining a community that believes that everyone has the right to the highest attainable standard of health and that care should be equitable and just.
    With initiatives well beyond publication
    We are committed to the medical science and public health communities and actively engage in advocacy that stimulates further thinking and dialogue around important issues affecting us all.
    With independence from any society or political body
    Our authors and readers benefit from the fact that we are unencumbered by the constraints of societal affiliation or conflicting agendas.
    With editors who will strengthen the quality of your work
    We care about our authors and work hard to develop a collaborative relationship throughout the publication process."

    Yeah, righto_O
     
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  13. Chrisb

    Chrisb Senior Member

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    "Us all" would presumably refer to the "medical science and public health communities".

    There is a very noticeable silence on where patients fit into all this.
     
    Valentijn, Snow Leopard and Solstice like this.
  14. Snow Leopard

    Snow Leopard Hibernating

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    There's far more incidents, like when he slandered people on Twitter etc.
     
    Last edited: Apr 11, 2017
    Sean and ukxmrv like this.
  15. adreno

    adreno PR activist

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    A knighthood must be around the corner.
     
  16. Yogi

    Yogi Senior Member

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    Luther Blissett likes this.

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