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Tribunal orders QMUL to release anonymised PACE data 16 Aug 2016

Discussion in 'General ME/CFS News' started by Sasha, Aug 16, 2016.

  1. Snowdrop

    Snowdrop Rebel without a biscuit

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    :lol: That's mighty considerate of you. Let's hope someone checks in with reality and sees where this is all headed (in PACEland the icebergs are not melting)
     
  2. Yogi

    Yogi Senior Member

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    Paolo Macchiarini is not guilty of scientific misconduct
    http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(15)00118-X/fulltext?rss=yes

    Thoroughly recommend EVERYONE to read this Defense of Machiarrini from last year (September 2015) and contrast with yesterday and today's news (5 and 6 September 2016). This was an editorial by the Lancet and presumably Richard Horton.

    It really shows the wrong-headed, defensive and flawed mindset we are up against. See how wrong Richard Horton and the Lancet were.

    It is a stunning editorial!

    Horton should not be worthy of even cleaning the Lancet's offices never mind editor in chief.
     
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  3. Esther12

    Esther12 Senior Member

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    Very odd. Why on Earth with ARUK be funding a longer-term follow up for PACE when it's been acknowledged that the LTFU data is almost uninterpretable. Oh yeah, and the whole study is just junk.
     
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  4. user9876

    user9876 Senior Member

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    It could be a mistake in the MRCs database as I couldn't find mention of in on the ARUK website
     
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  5. TiredSam

    TiredSam The wise nematode hibernates

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    Thanks, I did :).

    Yep. And any review or investigation of PACE should be carried out by its authors or their universities, and end there. At least the Lancet is consistent :rolleyes:

    What we could really do with is a television documentary, it seems to have been the most fast and direct way to cut all the crap in the Macchiarini case.
     
  6. Yogi

    Yogi Senior Member

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    Esther12 likes this.
  7. Yogi

    Yogi Senior Member

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    Thanks @A.B. @JES @Bob for checking and confirming back to us that only minor changes.:thumbsup::thumbsup::thumbsup:
     
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  8. Esther12

    Esther12 Senior Member

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  9. Bob

    Bob

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    The press release (about the tribunal decision), that most of the recent media articles were based on, has been made public...

    This is a major piece of work and a huge success for those involved...



    New thread:
    http://forums.phoenixrising.me/inde...se-of-withheld-data-text-now-available.46653/
     
    Last edited: Sep 6, 2016
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  10. Kalliope

    Kalliope Senior Member

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    Norway
    Open letter to Queen Mary University London about PACE published at virology blog from:

    prof Ronald Davis
    prof emeritus Jonathan Edwards
    prof Rebecca Goldin
    prof Bruce Levin
    Zaher Nahle
    prof Vincent Racaniello
    dr. Charles Shepherd
    prof John Swartzberg

     
  11. Kati

    Kati Patient in training

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  12. Sidereal

    Sidereal Senior Member

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    Fantastic letter.
     
  13. Sidereal

    Sidereal Senior Member

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    It was similar with the Wakefield fiasco. Horton has a striking ability to position himself on the wrong side of every argument. It's quite a skill actually. I can't fathom how he ever became editor in chief, let alone stayed editor in chief after all these calamities.
     
  14. user9876

    user9876 Senior Member

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    I suspect that the lancet's sales or profits have increased so he keeps his job, they probably aren't even thinking of the brand damage.

    His attitude seems to reflect one in the UK of not challenging those in authority.
     
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  15. Daisymay

    Daisymay Senior Member

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    Brilliant letter, thanks so much to all involved!
     
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  16. Large Donner

    Large Donner Senior Member

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    I really think that much of modern life in high profile well paid jobs has become somewhat like football management.

    One knows that financially you are set up economically compared to the average wage, you have a given amount of time in the hot seat and no matter how or when you are sacked, or how well you perform, you walk of with a great big pay off or even paid up to the end of your contract which is usually obscenely high remuneration.

    For some reason, unlike the average person you can walk into another obscenely high paid job regardless of the fact that its public that you were let go for being useless.

    I guess when you are doing the bidding of the establishment or have become a piece of furniture inside the establishment you just don't really care.
     
  17. worldbackwards

    worldbackwards A unique snowflake

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    Earth
    I just had a thought: are we officially not terrorists now? Good to know.
     
  18. Mrs Sowester

    Mrs Sowester Senior Member

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    I think you are on the money with that guess. PACE was funded to government policy.
     
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  19. moosie

    moosie

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  20. moosie

    moosie

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    actup, Wolfiness, mango and 6 others like this.

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