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Trial By Error, Continued: ME Research UK Drops Out of CMRC

Discussion in 'General ME/CFS News' started by Daisymay, May 22, 2017.

  1. Daisymay

    Daisymay Senior Member

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  2. AndyPR

    AndyPR Senior Member

    He also covers AfME's recent statement, saying in part
     
  3. Esther12

    Esther12 Senior Member

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    The statement from @Action for M.E. was frustratingly rediculous. Is it possible that they're so ill-informed that they could have believed what they were saying? Hard to know.
     
  4. Yogi

    Yogi Senior Member

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    Jo Best and dangermouse like this.
  5. Yogi

    Yogi Senior Member

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    No-one could be that misinformed. They have fingers in all the high profile stuff. They know exactly what they are doing.
     
    Last edited: May 22, 2017
  6. dangermouse

    dangermouse Senior Member

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    So, any news from ME Association?
     
  7. Esther12

    Esther12 Senior Member

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    They play dumb really convincingly. Is it possible that they have fingers in so much high-profile stuff because everyone with power knows they can be used as useful idiots?
     
  8. Yogi

    Yogi Senior Member

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    They are not dumb I can assure you. They have over £1m income each year. They are the best financially funded charity. If they were incompetent then they would not be the APPG secretariat would they and be involved in all the high profile stuff.

    It is a well know strategy of using charities as fronts for corporate/financial interests:

    http://forums.phoenixrising.me/inde...ded-by-action-for-me.44622/page-3#post-726339

    Seriously stop giving AFME any benefit of the doubt. AME are BPS/MUS/PACE.
     
    Esperanza, JaimeS, Daisymay and 2 others like this.
  9. user9876

    user9876 Senior Member

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    They are good at fund raising but they don't seem to have a grasp of the science - judging from their less than coherent statements.
     
    Esperanza, JaimeS, Demepivo and 2 others like this.
  10. Yogi

    Yogi Senior Member

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    They do have grasp of the science. They don't have pwME's interest in mind - that is the issue. They understand the science fully well just like the PACE authors and have their interests and the insurers in mind instead.
     
  11. Yogi

    Yogi Senior Member

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    Comment


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    This is the only way to go. I feel sorry for people giving money to AFME.
     
    slysaint, Esperanza, JaimeS and 9 others like this.
  12. Esther12

    Esther12 Senior Member

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    I'm not giving them the benefit of the doubt. I think they're terrible, I just don't know exactly what it is that leads to them being terrible. If they had a really good understanding of this stuff, but were trying to act as propagandists for PACE, Crawley etc, then imo they should be able to do a better job of it. They seem to be rubbish, whatever it is that they're trying to do.
     
    Esperanza and JaimeS like this.
  13. Jenny TipsforME

    Jenny TipsforME Senior Member

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    Bristol
    The timing of MERUK pulling out seemed more closely linked to the day with the MUPPETS. Although thinking about it a charity would struggle to make a decision that quickly.
     
    Jo Best likes this.
  14. Yogi

    Yogi Senior Member

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    They are doing a great job for themselves. They are the most high profile charity and got lots of cash. Sowing doubt and misinformation in pwME as can be seen. AFME are double dealing and doing very well from it. They work on behalf of the PACE/MUS/BPSers and also get fools to part with their money and donate to AFME at the same time.

    It is called a Win Win situation (for AFME)!
     
    Last edited: May 22, 2017
  15. slysaint

    slysaint Senior Member

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    I was just wondering this; there is no mention on their website about MERUK leaving the CMRC (and I can't find anything about the resignations from the PAG either).
    It has all gone eerily quiet........:cautious:
     
    dangermouse likes this.

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