Ysabelle-S
Highly Vexatious
- Messages
- 524
One case may be annoying and two a coincidence. But three give cause for suspicion.
There is the Lancet's apparent refusal to respond, followed by the apparent inability of AfME to communicate the decision of its Board. Now we have the CMRC saying keep schtum. This begins to look like a coordinated strategy, possibly the result of advice received.
One would think that it should not have been too difficult to stave off the worst effects of the recent conference debacle: apologise for incorrect use of photo, explain an apparent misunderstanding due to lack of full context of juxtaposition of images, expression of regret for any unintentional impression arising, explanation to DT and further apology. Indicate that the image will not be re-used.The matter would have been forgotten by now and we would have nothing to discuss.
You would expect such an approach to be standard. So why has it not been followed?
Is there a willingness to lose a battle to win a war?
I think their behaviour fits with the pattern of arrogance we've been seeing. They are not to be criticised, and they will not deign to respond. I think if they were a cancer or AIDS related org they wouldn't dare treat the patients like this. It pretty much sums up the sort of people ME patients in the UK have to deal with.